Plumeria84
Active member
- Joined
- Jul 22, 2011
- Messages
- 42
- Reason
- CALS
- Diagnosis
- 08/2009
- Country
- US
- State
- FL
- City
- Palm Coast
Ever find yourself wishing that you could for even just a moment make someone understand what it TRULY means to be a caregiver for someone with ALS ?
On the rare occasion that I end up telling someone I'm not super close to about our situation, you get the tilted face, sad lip "I'm sorry" but you know there was ZERO thought behind that response and they haven't A CLUE of what it really means. Well, I guess even those close to me can't possibly understand. They can try to imagine - but I'm sure they won't even come close.
Just wish I could touch their hand and let them for a moment feel all the anger, frustration, exhaustion(sp), love and heartbreak that goes into being a caregiver.
Just having a rough evening and wish that someone, anyone I knew in person could understand this for even a moment.
On the rare occasion that I end up telling someone I'm not super close to about our situation, you get the tilted face, sad lip "I'm sorry" but you know there was ZERO thought behind that response and they haven't A CLUE of what it really means. Well, I guess even those close to me can't possibly understand. They can try to imagine - but I'm sure they won't even come close.
Just wish I could touch their hand and let them for a moment feel all the anger, frustration, exhaustion(sp), love and heartbreak that goes into being a caregiver.
Just having a rough evening and wish that someone, anyone I knew in person could understand this for even a moment.