Super Chevy
New member
- Joined
- Jan 15, 2007
- Messages
- 4
- Reason
- PALS
- Country
- US
- State
- Alabama
- City
- Valley
Hi, I am new to the forum. My dad was diagnosed with ALS 1/06, but symptoms started 9/04. It took a while to get the diagnosis. His started in his leg as a slight limp and you all know how the rest goes. He is in a wheelchair and has maybe 5% usage in his legs but has 95% usage of arms and upper body. The last few weeks, things have started progressing a lot faster. He has had a litlle trouble with the swallowing and getting choked, nothing major. He has been using the cough assist and that has been great. His voice has changed a little in volume and his breathing has changed a lot. He just can't get a deep enough breath. They are trying to get the Bi-Pap, but his numbers at the dr. are to high for insurance and medicare to cover it. A few months ago he started getting heart burn and would have a metal taste in his mouth, that eventuall passed. Now in the last few weeks, he said that his food feels like it just stops in the middle of his chest and will not go down, then he will get sick. After that, he is ok for a little while but that takes away any energy that he had, which was not much.
I was just wondering if any one else has those same problems? Any advice would be greatly appreciated.
Thanks
I was just wondering if any one else has those same problems? Any advice would be greatly appreciated.
Thanks