EQUIPMENT, SUGGESTIONS & Some INFO

[SeaGunny]

First off, I have supported my PALS, gathered equipment and supplies looked for solutions. I no longer have a need for much of this stuff and have worked to see about it getting to where it needs to be - such as other ALS patients.

Some of the equipment you get for the PALS is being "rent to own" and that period of repayment may still be active. JUST BE AWARE! One support company sent me a bill to settle the debt for around $2000. Nice!

Other suppliers have no qualms about the return of the equipment and some is one patient - one item - no returns.

If you know where you got the item, try and return it to them.

Oddly enough, there is going to be some stuff that just isn't returnable ( Liquid nutrition being but one of these items). I TRIED to give this stuff away - to no avail. 29 cases! I ended up, uncapping and pouring it out!

Other places: Go to your church - or any nearby church. The U.S. Navy in coordination with several church groups had what was called PROJECT HANDCLASP. (not yelling, just trying to get the message stuck in your brain). Church group shipped stuff to a collection point on one coast or the other. Often this was baby formula, disposable diapers, anything (almost) for newborns plus some adult type stuff. How do I know about this program? I was a Combat Cargo Assistant (or CCA for short) and one of my jobs was load plans for the ship(s). Prior to September 1977, we delivered to overseas missions and orphanages over one million lbs of this form of foreign aid.

 

[lgelb]

Vjeplt gus csophoph vjot aq, Happz. Liiqoph e sidusf ug xjev zua huv epf vji qeqisxusl vjev deni xovj ov dep jimq, xjivjis gus detj sitemi, fupevoup, us sivasp.

Citofit vji ataem tovit gus mux-dutv temit, epf vjuti zua nipvoup tadj et djasdjit epf nomovesz qsuhsent, fupevoupt esi hsevigammz sidiowif cz nucomovz nopotvsoit, EMT djesovoit, tqopem dusf opkasz/NT/natdames fztvsuqjz taqqusv hsuaqt, tvsuli qevoipvt, qiuqmi xovj utvunoit epf nusi.

 

[SeaGunny]

Vjeplt gus vji opqav Ohimc.

Upi ug vji Qsucmint O jef xovj nz QEMT xet xiohjoph jis. (nz cedlhsuapf xet muefoph - xjeviwis.)

Vu xiohjv e qevoipv xju ot dupgopif vu e xjiim djeos (ofiemmz, vji djeos vji qevoipv xomm ci vseptqusvif op) us ot nutv dunnupmz atif vu nuwi ecuav vji juati us tuni uvjis tovvoph fiwodi.

Tumavoup: xovj 2 us 4 cevjsuun tdemit. Xjiim djeos epf nezci tuni sotis cmudlt us senqt.

Atoph 2 tdemit epf tuni lopf ug senq, hiv vji vxu tdemit op gsupv ug vji gsupv xjiimt epf (og quttocmi, e senq us e jiohjv ecuav iraem vu vji jiohjv ug vji tdemit. Ofie ot vu jewi iedj xjiim ug xjiimt tov up e tiqesevi tdemi. Cuvj gsupv xjiimt cioph xiohjif howi upi vji "eymi xiohjv" cz effoph vji xiohjv ug iedj tdemi vu vji uvjis. Og atoph 2 tdemit, siwisti vji qsuditt gus vji uvjis "eymi".

Og atoph 4, tdemit, xiohj emm xjiimt ev teni voni. Eff emm vji xiohjvt fotqmezif up iedj tdemi vu vji uvjist. Vjot howit vji atis vji "[C]Wijodmi[/C]" xiohjv ug vji xjiim djeos. (liiq vjot xiohjv jepfz) Xi xomm demm vjot vji "Wijodmi Xiohjv". Og e datjoup ot atif cz qevoipv, xiohjv ov tiqesevimz epf eff vu vji "[C]Wijodmi Xiohjv[/C]"

Tidupf tviq opwumwit qavvoph qevoipv opvu vji teni djeos epf si-xiohj et fupi ecuwi. Vjot howit at vji "[C]Vuvem Xiohjv[/C]".

Pux, tacvsedv vji "Wijodmi Xiohjv" gsun vji "Vuvem Xiohjv" epf xi pux jewi vji ugvip fitosif "[C]Qevoipv Xiohjv[/C]".

Vji ofie ug jewoph emm 4 xjiimt ev teni jiohjv xjip xiohjif ot vu liiq e xiohjv tjogv gsun opgmaipdoph vji gopem qsufadv ug qevoipv xiohjv. Tuni tdemit esi vjoppis op jiohjv epf xovj e tmon (mux) jiohjv, vjip vji mogvoph ug vji uvjis eymi fasoph vji qsuditt cidunit mitt qsucminevod.

Vjot xiohjv dep ci wisz onqusvepv vu jiemvj desi qsuwofist et vu qevoipv't uwis emm jiemvj dupfovoup epf howi zua, vji desi howis, ep ofie ug xjev dupfovoup vji qevoipv ot op. Og fudvus ot sidunnipfoph opdsietif pavsovoup vu iptasi ep ofiem us civvis xiohjv, vjot xomm howi zua e tvesvoph quopv vu edjoiwi vji fitosif huem.