ENMG clear but...

[Nikki J]

1 the emg may have abnormalities and not be ALS
2 I can’t see the comment you see
3 obviously our comments are not helpful to you at all and we are not here to argue
4 again refrain from posting until after you have all the results from your tms and visit to the specialist

everyone else please also refrain from commenting for now

 

[Nihilsum]

Hey that is my new feedback,

The first spécialist wanted to see me, to compare the 2 emg (one good and one abnormal)
She told me if you have ALS your nerves should as well denerv activ and not only chronicles. (That was said in the summary about the last EMG)

But she was very worring for another point because I said her my dysphagia beginning before my muscles attrophied. So we ll still fix the tdm in 2 weeks.

I heard PBP can be into ALS it's why in the EMG isnt clear ?

As well some people said Neurologue saw only 3 cases of ALS in their lifes and sometimes dont see the well symptôms.

 

[Nikki J]

About the emg that is what we said. Again please let us know what the tms says we won’t speculate beyond that.

I highly doubt that any general neurologist would only see 3 cases of ALS in their career. Internists see more than that in general practice though of course refer out for diagnosis

 

[Nihilsum]

Hi again here,

Hope everyone are fine.

I have at least the TMS or ERP (Event-Related Potential this is the same test?) in the attachment you can see the result. She as well did another EMG in the leg where the first neurologue find some denerv chronicle.

And a blood test about antibodies.

In the conclusion my Neurologue said "concerning sneaky signs about denerv chronicle is certainly no real meaning and dont explain the symptomatology". And she add "with EMG and clinical view we dont find any signs about motor neuron sickness category ALS".

So now... It is possible then could be another category about motor neuron ? Like a PBP for example? Because I saw it can progress in the limbs. In more the first symptoms where I lose my muscle is my face and neck added with difficulties to drink. I do wet cough and likely burp but without any smell since average one year and it's increase more and more.

For the moment all the EMG and the needles was on my limbs. So for another test we should to do EMG upper on my chin?
What do you think ?
Thanks for your active involvement

 

[Nihilsum]

Any advice ?

 

[Nikki J]

People who start with pbp and progress to symptoms elsewhere that you have reported then have their diagnosis changed to ALS and it will show ALS in an EMG so no not you. You have extremity symptoms you had an extremity emg and it didn’t show MND.

event related potentials is not the same test as TMS and is used to look for other non MND conditions like MS

as your doctor said it doesn’t look like MND. we already said that. Good luck in your search for answers they are not here

closing thread. Do not start another