BetsyB
Active member
- Joined
- Apr 6, 2016
- Messages
- 96
- Reason
- PALS
- Diagnosis
- 04/2016
- Country
- IL
- State
- AA
- City
- hadarom, israel
Re: ramblings afterward ... Toby's gone
I am so sorry to hear of your husband's suffering and your own, and of your loss. You sound like you were an amazing CALS.
I am newly diagnosed and am trying to sort out my wishes for end of life decionmaking, so I want to ask, if it is not too raw for you to write about, how did your husband define suffering that was for him intolerable?
I think there are several ways to define it and I am trying to learn what are the most useful ways of defining it.
Inability to communicate, physical pain, air hunger, emotional pain of excessively burdening the family, loss of cognitive functioning? what else?
Thank you for your post.
Betsy
I am so sorry to hear of your husband's suffering and your own, and of your loss. You sound like you were an amazing CALS.
I am newly diagnosed and am trying to sort out my wishes for end of life decionmaking, so I want to ask, if it is not too raw for you to write about, how did your husband define suffering that was for him intolerable?
I think there are several ways to define it and I am trying to learn what are the most useful ways of defining it.
Inability to communicate, physical pain, air hunger, emotional pain of excessively burdening the family, loss of cognitive functioning? what else?
Thank you for your post.
Betsy