ella
New member
- Joined
- Feb 16, 2007
- Messages
- 4
- Reason
- PALS
- Country
- US
- State
- California
- City
- Santa Cruz
Hi,
I have read lots of posts and find that there are roughly two categories: one- Als related pragmatic questions and two- people who think they might have ALS and are scared and confused (that would include me).
Here is the question: How did you find your Neurologist go about the process of diagnosing you. Did you first get screened for common and treatable conditions. (MG, Parkinsons, Wilson's) common conditions (Multiple sclerosis, myotonic muscular dystrophy) or did you present with clear cut symptoms, highly suggestive of ALS.
For all of us that arrive at this forum ( and we are lucky to have done so) after frantic Google searches of our symtoms - could it be that there are a myrriad of presentations of neuroligical conditions that GOOGLE never heard of, that we may never be diagnosed?
I probalbly share a common sentiment: I just want to know!
Is there a chance to never get diagnosed, yet get continually worse?
Does no diagnosis mean- get on with your life and stop thinking worst case scenarios?
What would be most helpful for me to know: How long since you first sensed something was wrong (what was it) untill you arrived at your diagnosis? Thank You for all of your kind words and understanding since I joined. Ella
I have read lots of posts and find that there are roughly two categories: one- Als related pragmatic questions and two- people who think they might have ALS and are scared and confused (that would include me).
Here is the question: How did you find your Neurologist go about the process of diagnosing you. Did you first get screened for common and treatable conditions. (MG, Parkinsons, Wilson's) common conditions (Multiple sclerosis, myotonic muscular dystrophy) or did you present with clear cut symptoms, highly suggestive of ALS.
For all of us that arrive at this forum ( and we are lucky to have done so) after frantic Google searches of our symtoms - could it be that there are a myrriad of presentations of neuroligical conditions that GOOGLE never heard of, that we may never be diagnosed?
I probalbly share a common sentiment: I just want to know!
Is there a chance to never get diagnosed, yet get continually worse?
Does no diagnosis mean- get on with your life and stop thinking worst case scenarios?
What would be most helpful for me to know: How long since you first sensed something was wrong (what was it) untill you arrived at your diagnosis? Thank You for all of your kind words and understanding since I joined. Ella