Chase_Corin
Distinguished member
- Joined
- Nov 24, 2010
- Messages
- 135
- Reason
- Loved one DX
- Diagnosis
- 11/2010
- Country
- CA
- State
- On
- City
- Perth, Ontario
Well the Hospital bed arrived today and my dad had a hard time accepting it.
He wants to keep acting as though nothing is wrong and I see him faltering every day. My mom was no longer able to get him in and out of bed and he dosn't seem to understand that. Mom has Fibromyalsia and a bad back and I am not alway there to help her.
I think dad is activly resisting change because it's all so scary for him. Each piece of equipment that is brought in is a visual confirmation to him that he is getting worse and I don't know how to react to make him see it in a better light.
We had grab bars installed years ago because of his and mom's back so that isn't such a big deal but the transfer bench and the hospital bed are big reminders. We are also having estimates for a porch lift being offered because he is having a terrible time with the stairs.
The ALS Society here in Canada is wonderful but they don't offer much help in dealing with the emotional aspects of it all. We can't go to support meetings because they are over an hour away and dad refuses to talk to anyone about it.
We finally after months and months of him avoiding the subject got both mom and dad to revise their will, set up power of attorney and a living will but it was a very hard subject for dad to broach.
Dad has always been a very stoic person and dosn't like discussing his health, the future or even his last wishes. We are not pressureing him but my mom wants to know all of these things before he looses the ability to speak.
I am writing down things as they come up as to when Bills need to be paid and how things in the house like the furnace and things need to be maintained. It's not the little things that are bothering me its how to deal with the emotions.
My dad never used to cry and now he does all the time. I have to leave the room before I burst into tears too. Does anyone have the same problem?
He wants to keep acting as though nothing is wrong and I see him faltering every day. My mom was no longer able to get him in and out of bed and he dosn't seem to understand that. Mom has Fibromyalsia and a bad back and I am not alway there to help her.
I think dad is activly resisting change because it's all so scary for him. Each piece of equipment that is brought in is a visual confirmation to him that he is getting worse and I don't know how to react to make him see it in a better light.
We had grab bars installed years ago because of his and mom's back so that isn't such a big deal but the transfer bench and the hospital bed are big reminders. We are also having estimates for a porch lift being offered because he is having a terrible time with the stairs.
The ALS Society here in Canada is wonderful but they don't offer much help in dealing with the emotional aspects of it all. We can't go to support meetings because they are over an hour away and dad refuses to talk to anyone about it.
We finally after months and months of him avoiding the subject got both mom and dad to revise their will, set up power of attorney and a living will but it was a very hard subject for dad to broach.
Dad has always been a very stoic person and dosn't like discussing his health, the future or even his last wishes. We are not pressureing him but my mom wants to know all of these things before he looses the ability to speak.
I am writing down things as they come up as to when Bills need to be paid and how things in the house like the furnace and things need to be maintained. It's not the little things that are bothering me its how to deal with the emotions.
My dad never used to cry and now he does all the time. I have to leave the room before I burst into tears too. Does anyone have the same problem?