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Myrtle

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My previous threads are old and have been locked so that is why I’m opening a new thread. A couple months ago I did get an emg and based on the results my neurologist came to the conclusion I have cramp fasiculation syndrome.

The reason why I was given that diagnosis was because to him I didn’t show atrophy or weakness based on the tests given to me. Since then I have started physical therapy and they have noticed my left side is considerable smaller and weaker.

My first emg was done by an neuromuscular specialist and they found nothing other than fasiculations. I was wondering how often does the first emg miss als? Should I schedule a second emg or am I wasting everyone’s time.
 

KimT

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I can only speak for myself but my first EMG (a year before diagnosis) was VERY dirty. It showed active and chronic changes. I knew I was weaker but my doctor didn't think I was so they followed me for a year before my clinical exam matched the EMG. Meanwhile, they did all the other rule out testing.

I really believe the EMG shows things before clinical presentation.

What are they doing for the cramp fasciculation syndrome? I've heard Valium works pretty good. You can also try CBD oil for relaxation, magnesium (oral and topical oil.)

I'm glad your EMG was clean! That's great news.
 

Myrtle

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As of right now they haven’t given me any medication... they wanted to see results from physical therapy and sleep study before I get any medication.
 

Myrtle

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I think I might try the cbd oil in the mean time. Appreciate the suggestion
 

lgelb

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Hi Myrtle,

I don't think the EMG missed anything. Now you can focus on what it takes to feel better.

If all else fails, benzos like Valium can help, but since they are sedating and you are doing PT/wanting to strengthen your L side, I would start with other approaches.

Magnesium lotion (just a touch) on the hot spots is a great first step. Don't neglect diet and hydration, either. Sometimes you favor one side without realizing it, so be sure to ask the PT to look at your gait, stance, etc. and suggest new habits you might want to adopt. Ballet, barre, tai chi and Pilates might also be considerations.

Best,
Laurie
 

Myrtle

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Thanks for the responses. I went to another physical therapy today and this time my therapist noticed the atrophy/weakness in my left elbow/tricep. He just noted that as an area that we need to work on.

If I have atrophy and twitches but a negative emg am I still good? I always hear people state if you have a clear emg and no atrophy your good... but I only have the clear emg. I have a follow up schedule with my neurologist in March... not sure if i need to get that pushed up
 

KimT

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Atrophy can be caused by underuse of the muscle. If you have not worked out using that muscle it could atrophy.

You're still good.

Work with your PT to strengthen the weak muscle.
 
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