myooshka
Active member
- Joined
- Aug 4, 2007
- Messages
- 97
- Country
- CA
- State
- alberta
- City
- Sylvan Lake
Hi to all I am 16 months into my illness. I have been given mri,spinal tap,ncs all were normal. I have had the twitching since the beginning with extreme muscle fatigue but was never given an emg which I now see is odd as this seems to be the standard test for people with weakness and twitching. I was given two ncs which were normal and I was wondering if als/mnd shows up in ncs? I realize the emg is performed differently fom the ncs but could somone fill me in on the differences between these two tests? For others who it took quite some time for diagnosis was it because emg was normal at first or because it took sometime before this test was performed? With me they were originally thinking ms because I have sensory involvement so maybe that is why they have never performed an emg on me, I don't feel like I should have to know about these tests, it should br the doc's job to send for these tests. Well if someone can answer my questions that would be great. Also are floaters common with als/mnd as well besides the fact my tongue is shorter and scalloped I get large spots where my tongue is bald just red, I think it's called geographical tongue. It seems I have some of ms symptoms but then the muscle wasting which is my biggest concern. I am supposed to be seen at an als/mnd clinic on Dec 19th but it's not for sure, that's a whole other story. Well hopefully I'll get some answers soon, it's not that I want a diagnosed but I need the resources in place and the diagnosed is more for others than myself, at this point I've been living with this illness, it's more that my husband needs a name, let's just hope it's not mnd but my body is telling me this diagnosed is coming. Thanks to all on here for the support it means the world to me. It is such a blessing to have a place to come to with others that are having the same struggles. This forum has made me shed tears for others and for my family and I but most important has given me support, spiritual and emotional, friendship and many good laughs!We are all so lucky to have this forum and each other.Mya