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Kimkim

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Hi,
First time posting to this forum. Thank you for taking the time to respond.

My main question is: I don't believe that I will be diagnosed with ALS tomorrow. But I dobelieve that I have something, and I do believe that I am getting worse. I don't really know what to do. If my EMG is clean tomorrow, can I be sure it isn't ALS, considering my symptoms? I am 23 yr old male and had a clean EMG when I got bodywide twitching 6 months ago

Like many people, I had bodywide twitching and was told BFS. But unlike many others, my problems started with a dull weakness in my right leg (sort of a numb, asleep feeling on the inside, not on the skin). Since then, I have developed really bad breathing problems (it's very uncomfortable to lie flat and it is difficult to laugh. Sometimes wake up and difficult to fall asleep due to breathing), cramps in hands, feet and sometimes abdomen, and nerve pain in both of my hands. My pinkies sort of "snap" up and down instead of moving smoothly.

if my EMG is clean tomorrow, can I be pretty sure it's not ALS? I am not super fond of my neurologist, and I'm afraid he isn't going to do a thorough job. He is a specialist in Myasthenia Gravis. I really feel like I am going downhill regardless of what problem I have.

Thank you again
 
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KimT

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I would encourage you to talk to your doctor and get the EMG results explained to you. Write down all your symptoms so he has something to go on. Write down all your questions. I doubt you have ALS but you need to figure out how to feel better.
 

Kimkim

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thank you. I'm kind of at a loss. My symptoms don't seem to fit any disease but I am in so much pain and discomfort. Hopefully the EMG will be clean or mostly clean tomorrow. My neurologist seems to think I am wasting his time but I don't know what else I can do... thanks again.

edit: and I will try to write my concerns down this time that is a good suggestion
 
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