Suliwaks
Member
- Joined
- Jul 25, 2020
- Messages
- 10
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- NG
- State
- AB
- City
- AB
Hello good day everyone.
I dont know if to classify myself as a new member or potential member. I have tried to stay off reading from the web but as you all can imagine it has been difficult. The reason why I am posting is because I am having some symptoms that doesn’t correlate with ALS. So I will start from the beginning
Sometime in December last year while seated i had a funny feeling. I looked up stroke and then dismissed it. two days later I tried to have intercourse with my partner but I noticed I could not maintain an erection. I had test for infection with came back with escheria coli. Treated but ED still present.
Then I noticed that my Two fingers have curled inwards and then came an almost severe back pain which is still present. As long as my back is not rested against something it pains or when i carry anything heavy.
I then I started noticing that I had lost grip on my hand, Then I noticed muscle weakness and cramp whiich has progressed and then atrophy Follwed in both hands. And i also got weaker on my legs
furthermore I lost coordination with my walking, i can stand on my right leg but not so much on my left.
Then the final two symptoms followed almost the same time; Muscle twitching (first shoulder, then arm and back and thighs) and difficulty talking. I can still eat food normally but I find it difficult with liquids.
And oh, my reflexes are all over the place
At first it was suggested that I might have cervical spondylolysis but the MRI was normal. It just noted Posterior prostration of c3 /c4 - c6/c7 disc material with indention on the theca was noted and also subtle Change in the spinal cord more prominent on T2 flair (hyperintense) at c3 -c5 level.
then my Csf showed low serrum for both igg and alb.
Then i had EMG and NCV which stated “highly suggestive of ALS”
I must point out that im 29yrs old from a developing country with a long history of misdiagnose (maybe i want to tell myself that for hope). I cant go out for better medical evaluation which is why im here.
i need your opinion. Thank you
Sorry it is abit lenghty but i wanted to be very detailed
I dont know if to classify myself as a new member or potential member. I have tried to stay off reading from the web but as you all can imagine it has been difficult. The reason why I am posting is because I am having some symptoms that doesn’t correlate with ALS. So I will start from the beginning
Sometime in December last year while seated i had a funny feeling. I looked up stroke and then dismissed it. two days later I tried to have intercourse with my partner but I noticed I could not maintain an erection. I had test for infection with came back with escheria coli. Treated but ED still present.
Then I noticed that my Two fingers have curled inwards and then came an almost severe back pain which is still present. As long as my back is not rested against something it pains or when i carry anything heavy.
I then I started noticing that I had lost grip on my hand, Then I noticed muscle weakness and cramp whiich has progressed and then atrophy Follwed in both hands. And i also got weaker on my legs
furthermore I lost coordination with my walking, i can stand on my right leg but not so much on my left.
Then the final two symptoms followed almost the same time; Muscle twitching (first shoulder, then arm and back and thighs) and difficulty talking. I can still eat food normally but I find it difficult with liquids.
And oh, my reflexes are all over the place
At first it was suggested that I might have cervical spondylolysis but the MRI was normal. It just noted Posterior prostration of c3 /c4 - c6/c7 disc material with indention on the theca was noted and also subtle Change in the spinal cord more prominent on T2 flair (hyperintense) at c3 -c5 level.
then my Csf showed low serrum for both igg and alb.
Then i had EMG and NCV which stated “highly suggestive of ALS”
I must point out that im 29yrs old from a developing country with a long history of misdiagnose (maybe i want to tell myself that for hope). I cant go out for better medical evaluation which is why im here.
i need your opinion. Thank you
Sorry it is abit lenghty but i wanted to be very detailed