Kosmoskatten
Distinguished member
- Joined
- Nov 6, 2013
- Messages
- 224
- Reason
- Other
- Country
- SE
- State
- None
- City
- Stockholm
I am a 37 year old female.
I have issues with lisping/slurred speech and slight swallowing difficulties. Tongue feels swollen. Lips are sometimes visibly swollen. I have been biting the inside of my mouth and my tongue occasionally.
No tongue weakness as i can see, I can still tent cheeks, move tongue around and touch the back of my mouth. No visible atrophy, however I notice lines on my tongue which has become more pronounced and become of larger number.
I also have weakness in right arm and right leg.
I have seen a neurologist and this week I finally had my EMG with the neurophysiologist unit.
Tongue EMG showed abnormalities, they put the needle under my chin in my tongue muscle and there was a constant buzz/constant spontaneous activity at about 20Hz. Arm and leg was normal.
I have not got my EMG back yet from my primary neurologist, and I am quite worried.
The doctor performing the test called in two other doctors whom all evaluated it. They seemed not to know what it was, more than it was abnormal!
I asked about ALS, and they said definately not, all three of them, but when I read about it, it says everywhere that spontaneous activity at a high frequency is indicative of ALS.
I don't know if I should really trust the doctors, I have got progressively worse and I still fear bulbar onset. I know that my primary physician will get back to me in due time, but I would like a second opinion from people who have been through this process.
I have issues with lisping/slurred speech and slight swallowing difficulties. Tongue feels swollen. Lips are sometimes visibly swollen. I have been biting the inside of my mouth and my tongue occasionally.
No tongue weakness as i can see, I can still tent cheeks, move tongue around and touch the back of my mouth. No visible atrophy, however I notice lines on my tongue which has become more pronounced and become of larger number.
I also have weakness in right arm and right leg.
I have seen a neurologist and this week I finally had my EMG with the neurophysiologist unit.
Tongue EMG showed abnormalities, they put the needle under my chin in my tongue muscle and there was a constant buzz/constant spontaneous activity at about 20Hz. Arm and leg was normal.
I have not got my EMG back yet from my primary neurologist, and I am quite worried.
The doctor performing the test called in two other doctors whom all evaluated it. They seemed not to know what it was, more than it was abnormal!
I asked about ALS, and they said definately not, all three of them, but when I read about it, it says everywhere that spontaneous activity at a high frequency is indicative of ALS.
I don't know if I should really trust the doctors, I have got progressively worse and I still fear bulbar onset. I know that my primary physician will get back to me in due time, but I would like a second opinion from people who have been through this process.