- Joined
- Jun 24, 2024
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- OR
- City
- Portland
Hello to all the amazing members here. I am hoping to get some insight about my recent EMG/NCS. Quick backstory for context.
About 6 months ago I was out sledding with my kids. The next day my legs were twitching somewhat. Not realizing at that time that I had inadvertently worked out (going up and down the hill many times), I googled reasons for twitching (big mistake, I know). The fear of ALS crept in, the twitching increased over the next week or so (all over my body), as did the hypnic jerks, anxiety, etc. I have a history of health anxiety. After reading some helpful stickied threads here, I realized that my twitching did not fit the description of ALS. I calmed down a bit and the twitching substantially decreased.
However the fear of bulbar onset took hold and off and on for the past 6 months I have been dealing with intermittent, perceived speech issues (not noticed by anyone else). Twitching was essentially gone (I can't really remember, I wasn't focusing on it). Had an all clear neuro exam 3 months ago. Was doing better mentally but went down the rabbit hole again with some recent stress. Decided to ask for an EMG which was earlier this week. Mainly wanting to rule out bulbar issues.
Leading up to the EMG I thought to myself, I hope I don't go in there twitching and throw off the test. So naturally, the twitching started again. Mainly in both of my calves but elsewhere too, just not as much. The EMG neurologist (different one) tested my strength and reflexes, all normal. Checked my tongue for strength and fasciculations, also normal. Right trapezius muscle tested, normal. Also checked both legs, some paraspinals, and NCS (which the NCS had some abnormalities). She verbally went over my findings with me which are consistent with the summary in the report. So my fear of bulbar was abated, and no surprise my perceived speech issues went away almost instantly.
She did find some activity in the left calf. With my focus on that now, the twitching in the calves has persisted (both right and left). I have no weakness that I can tell. Some history of lower back pain/sciatica (nothing extreme, but one bought several years ago that was good enough where I got checked out for a hernia due to pain). I am a dentist and we typically have neck and/or lower back issues.
Anyways, due to some of the findings, I am a bit worried. However her report suggest peripheral neuropathy, possible radiculopathy. She said the results are not consistent with MND. She has many years experience and I am inclined to trust the doctors. However given my anxiety and how knowledgable some of the members here are, I am wondering if any of this (my story, neuro exam, 6 month timeline, EMG results) looks concerning from the perspective of MND.
I have not followed up yet with my neurologist since the report just came through a few days ago. Thank you for taking the time to read this!
About 6 months ago I was out sledding with my kids. The next day my legs were twitching somewhat. Not realizing at that time that I had inadvertently worked out (going up and down the hill many times), I googled reasons for twitching (big mistake, I know). The fear of ALS crept in, the twitching increased over the next week or so (all over my body), as did the hypnic jerks, anxiety, etc. I have a history of health anxiety. After reading some helpful stickied threads here, I realized that my twitching did not fit the description of ALS. I calmed down a bit and the twitching substantially decreased.
However the fear of bulbar onset took hold and off and on for the past 6 months I have been dealing with intermittent, perceived speech issues (not noticed by anyone else). Twitching was essentially gone (I can't really remember, I wasn't focusing on it). Had an all clear neuro exam 3 months ago. Was doing better mentally but went down the rabbit hole again with some recent stress. Decided to ask for an EMG which was earlier this week. Mainly wanting to rule out bulbar issues.
Leading up to the EMG I thought to myself, I hope I don't go in there twitching and throw off the test. So naturally, the twitching started again. Mainly in both of my calves but elsewhere too, just not as much. The EMG neurologist (different one) tested my strength and reflexes, all normal. Checked my tongue for strength and fasciculations, also normal. Right trapezius muscle tested, normal. Also checked both legs, some paraspinals, and NCS (which the NCS had some abnormalities). She verbally went over my findings with me which are consistent with the summary in the report. So my fear of bulbar was abated, and no surprise my perceived speech issues went away almost instantly.
She did find some activity in the left calf. With my focus on that now, the twitching in the calves has persisted (both right and left). I have no weakness that I can tell. Some history of lower back pain/sciatica (nothing extreme, but one bought several years ago that was good enough where I got checked out for a hernia due to pain). I am a dentist and we typically have neck and/or lower back issues.
Anyways, due to some of the findings, I am a bit worried. However her report suggest peripheral neuropathy, possible radiculopathy. She said the results are not consistent with MND. She has many years experience and I am inclined to trust the doctors. However given my anxiety and how knowledgable some of the members here are, I am wondering if any of this (my story, neuro exam, 6 month timeline, EMG results) looks concerning from the perspective of MND.
I have not followed up yet with my neurologist since the report just came through a few days ago. Thank you for taking the time to read this!
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