Atsugi
Moderator emeritus
- Joined
- Jan 11, 2011
- Messages
- 5,921
- Reason
- Lost a loved one
- Diagnosis
- 12/2010
- Country
- US
- State
- FL
- City
- Orlando
Hey Double, I understand you're very cautious and vigilant. In general, it's normal to be afraid of a terminal disease. You are moving more toward paranoid.
While I'm watching this thread , I see that your fear is causing you to ignore really smart people, and your fear is making you second guess your doctor, as though you have a better understanding of ALS than he does. Since you don't have a medical degree, and I think you probably don't understand ALS, either, I'll try to give you the comfort you really deserve.
A neuromuscular specialist has examined you physically, analyzed your history, seen the results of laboratory tests, and reviewed the results of some really high-tech, expensive tests that doctors rely on to diagnose or rule out ALS. He said no ALS.
He said you don't have ALS. Now, he doesn't know what else it might be. So, maybe there's some other things to see. But it’s NOT ALS. You’re not dying.
All your posts have been reviewed by really smart, educated people who have a TON of experience with ALS. In fact, most of the people on this thread know ALS BETTER than most doctors. And they were really polite, but they all said you don't have ALS.
Some people use weasel words to be polite. The test "indicates" or "suggests" or "at this time."
Now you say you're not sure. You have more questions, because you don't understand ALS. I hate to break it to you in an impolite way, but just because you don't understand the science, doesn't mean you might still have ALS. You don't.
You're wasting your time chasing a disease you don't have, and worrying yourself. That ANXIETY can be life-changing. It often destroys relationships.
I wish you luck with your doctors. IF you don’t feel you can rely on the doctors you’ve seen, then get a second opinion at a world-class clinic, like Mayo or Cleveland.
While I'm watching this thread , I see that your fear is causing you to ignore really smart people, and your fear is making you second guess your doctor, as though you have a better understanding of ALS than he does. Since you don't have a medical degree, and I think you probably don't understand ALS, either, I'll try to give you the comfort you really deserve.
A neuromuscular specialist has examined you physically, analyzed your history, seen the results of laboratory tests, and reviewed the results of some really high-tech, expensive tests that doctors rely on to diagnose or rule out ALS. He said no ALS.
He said you don't have ALS. Now, he doesn't know what else it might be. So, maybe there's some other things to see. But it’s NOT ALS. You’re not dying.
All your posts have been reviewed by really smart, educated people who have a TON of experience with ALS. In fact, most of the people on this thread know ALS BETTER than most doctors. And they were really polite, but they all said you don't have ALS.
Some people use weasel words to be polite. The test "indicates" or "suggests" or "at this time."
Now you say you're not sure. You have more questions, because you don't understand ALS. I hate to break it to you in an impolite way, but just because you don't understand the science, doesn't mean you might still have ALS. You don't.
You're wasting your time chasing a disease you don't have, and worrying yourself. That ANXIETY can be life-changing. It often destroys relationships.
I wish you luck with your doctors. IF you don’t feel you can rely on the doctors you’ve seen, then get a second opinion at a world-class clinic, like Mayo or Cleveland.