Nordman
New member
- Joined
- Oct 2, 2014
- Messages
- 3
- Reason
- Learn about ALS
- Country
- NO
- State
- Norway
- City
- Norway
Hi
41 year old man here.. Here is my story..
So now, i am waiting for the new MR, and is obviously a little scared in my pants :neutral:
It’s a good thing that it is contained to C4-C8, right? Can that indicate that its not ALS? Would ALS at least show some deterioration of the other nerves?
But, I guess i clearly have some form of Motor Neuron Disease.. Comments are welcome
41 year old man here.. Here is my story..
- I have always had very thin shoulders and arms. (The other kids made a little fun of me in school).
- I have never done any systematic exercise or working out.
- The last couple of years i have increasingly felt weakness in my arms. Especially when preparing food, or folding clothes etc. Right arm feels weaker than left.
- January 2014, i started working out and it became evident i had some problems, i had problems raising my arms and used other muscles to compensate.
- Did a MR and ultrasound of the shoulder. They could see atrophy and fat infiltration of the muscles.
- I went to a physical therapist. They did some physical tests and saw some of my arm/shoulder muscles were practically paralyzed.
- Went to see a neurologist:
- I think Sensoric and Motoric Neurography was fine - I have no problems sensing things with my fingers or skin. I think nerve speed and that was also ok.
- The EMG however was pretty bad, C4, C5, C6 and C8 bilaterally, and C7 right side, was chronically deteriorated.
- EMG said legs are normal
- I believe C1-3 and T1 was also fine.
- The neurolog concluded in his written summary that: It could fit with multiple Cervical Rhizopathy, or (SMA)?
- (The neurologist put the question mark in there, after SMA)
- Did a MR in a 1T machine. They did not see any problems, but indicated that the pictures was a little unclear and recommended i get a MR in a 1.5T machine.
- Saw another neurologist who checked all sensor and motor functions, tongue out, eyes, blow cheeks, touch nose, stand on one leg, reflex hammer etc. All was fine except the weakness in my arms. He is now sending me to the 1.5t MR machine.
So now, i am waiting for the new MR, and is obviously a little scared in my pants :neutral:
It’s a good thing that it is contained to C4-C8, right? Can that indicate that its not ALS? Would ALS at least show some deterioration of the other nerves?
But, I guess i clearly have some form of Motor Neuron Disease.. Comments are welcome