Teedot
Member
- Joined
- Oct 17, 2016
- Messages
- 23
- Reason
- Learn about ALS
- Country
- CA
- State
- On
- City
- Toronto
Hi -
Beginning of September I started getting very noticeable calf cramping - very sudden. When massaging it, I noticed a very noticeable twitch in the calf. A little alarmed, I looked further and noticed both feet, calves and thighs showed the same type of fascination - nearly 24/7.
My doc (after witnessing it) did extensive blood work for Thyroid, Diabetes and Electrolytes - all came back normal. I was referred to a neurologist who believed it was benign but sent me for an EMG/NCV.
My EMG was done by a tech (not a neurologist as he was not able to perform it) 2 weeks into the twitching and on both legs (5 needles each and 4 different nerve roots) my Lumbar Paraspinal (upper, middle and upper) and for upper body he did Deltoid, bicep and Masseter muscle on both sides. The study came back clean (normal insertion, no Fibs, no Psw ) and everything else checked out.
I was greatly reassured but since then, the twitching has gotten worse and I now have roving ones in my arms and shoulders and my lower abdomen, both visible but 75-80% still happening in my legs. My legs are heavy and short walks (from my parking spot to the office) make them very fatigued. I expressed my worries to my neuro last week and asked him if it is possible that the emg would have been done too early.
He said he isn't extremely familiar with the topic and is sending me for a repeat one (despite having a normal clinical exam) - solely based on the (very visible) and constant fascinations. I was hoping to be immediately reassured by his visit but the fact he is sending me on another one may indicate he has worries. He did say I do not fit the age category (I am 36) and did additional blood work for both ferritin and CK levels (which both came back in the low range of normal) - which he claims points away from ALS.
I have been reading up on the BFS possibility but the causes don't resonate with me (I don't drink alcohol, coffee or am on any Rx medications). So perhaps the novel I am laying out here could be summarized in one sentence:
Could I simply have gone in too early (2 weeks in) to have this EMG done or do you believe that once fascinations are visible, there should be sufficient damage done to show an abnormality on the EMG?
Beginning of September I started getting very noticeable calf cramping - very sudden. When massaging it, I noticed a very noticeable twitch in the calf. A little alarmed, I looked further and noticed both feet, calves and thighs showed the same type of fascination - nearly 24/7.
My doc (after witnessing it) did extensive blood work for Thyroid, Diabetes and Electrolytes - all came back normal. I was referred to a neurologist who believed it was benign but sent me for an EMG/NCV.
My EMG was done by a tech (not a neurologist as he was not able to perform it) 2 weeks into the twitching and on both legs (5 needles each and 4 different nerve roots) my Lumbar Paraspinal (upper, middle and upper) and for upper body he did Deltoid, bicep and Masseter muscle on both sides. The study came back clean (normal insertion, no Fibs, no Psw ) and everything else checked out.
I was greatly reassured but since then, the twitching has gotten worse and I now have roving ones in my arms and shoulders and my lower abdomen, both visible but 75-80% still happening in my legs. My legs are heavy and short walks (from my parking spot to the office) make them very fatigued. I expressed my worries to my neuro last week and asked him if it is possible that the emg would have been done too early.
He said he isn't extremely familiar with the topic and is sending me for a repeat one (despite having a normal clinical exam) - solely based on the (very visible) and constant fascinations. I was hoping to be immediately reassured by his visit but the fact he is sending me on another one may indicate he has worries. He did say I do not fit the age category (I am 36) and did additional blood work for both ferritin and CK levels (which both came back in the low range of normal) - which he claims points away from ALS.
I have been reading up on the BFS possibility but the causes don't resonate with me (I don't drink alcohol, coffee or am on any Rx medications). So perhaps the novel I am laying out here could be summarized in one sentence:
Could I simply have gone in too early (2 weeks in) to have this EMG done or do you believe that once fascinations are visible, there should be sufficient damage done to show an abnormality on the EMG?