Nope, I have not been diagnosed with ALS. My 11-year old niece (identical twin) two years ago, began having shoulder and arm weakness. This progressed to decreased arm function and eventually a foot drop. This then went to the other side. She is now on a ventilator. I'm just searching for answers. Some of the things I have come across, but not proven, is a conduction block and loss of reflexes are not present in PALS as well as antobodies to acetycholine.
Her reflexes degenerated along with the non-use of her extremities. I've read that reflexes are brisk in PALS and therefore, no conduction block is present.
Just trying to find answers.
Mike