Hi! I'm sorry for opening another thread, I described my issues in my original thread in April this year. But I still don't know the reason of my problems and I have noticed new symptoms since then, which make me quite terrified. I will try to keep it as short as possible:
- twitching/pulsation in the right elbow
- started 4-5 months ago
- pretty much persistent (24/7), I can particularly feel it when my arm is relaxed, if I flex my arm it stops for a moment, so I can "kind of" stop it but it comes back after a minute or two
- same spot each time - I've also had twitching in my whole body for several months, but the elbow worries me the most as it's always the same spot
- I feel that my arms (especially right one) get tired easily (e.g. when washing hair, typing on a keyboard), but I can still do all the daily activities, I just feel that my arms need to rest for a moment
- can also feel some kind of "stiffness" in both arms - as if they were stressed all the time
- I've measured my arms and can't see any differences, I have only noticed maybe a small, shallow "dent" (but only when I flex my elbow) next to the spot that is twitching but maybe it's been always like that, I have also noticed my skin on the right arm seems a bit "thinner" than on the left one, but can't see any obvious signs of atrophy - still I know only a doctor can judge this
- low activity tolerance - even the simplest exercises (e.g. yoga) make my whole body start shaking
- I have had number of other symptoms before (stiffness in limbs, numbness, tingling) which I know point away from ALS, but I'm not sure if this is all related. I have been diagnosed with latent tetany, but my doctor said twitching in the same spot is not really specific to tetany. They only asked me whether I was losing weight or had any issues with swallowing. I have lost a bit of weight, but that was probably normal because of a diet. I have seen another doctor recently and they ran a clinical examination on me, but I'm concerned that maybe they didn't think about ALS, I thought they wanted to rule out MS.
(video removed by mod, not helpful)
So here's my most important question:
Do you think, if I had that constant elbow twitching for 4-5 months now, I would have noticed some obvious failure/atrophy by now? Or is it still too early to say? I know it's hard to answer this, but what is your feeling? I know ALS progresses quickly, so I'm wondering if several months is a "safe" amount of time and if anything bad was to happen it would have happened by now? Or maybe you don't see anything worrisome in what I describe? (I never had an EMG) I have also read something about slightly slower progress among younger patients (I'm 29).
Sorry for taking your time, I would really appreciate hearing your thoughts on this.
- twitching/pulsation in the right elbow
- started 4-5 months ago
- pretty much persistent (24/7), I can particularly feel it when my arm is relaxed, if I flex my arm it stops for a moment, so I can "kind of" stop it but it comes back after a minute or two
- same spot each time - I've also had twitching in my whole body for several months, but the elbow worries me the most as it's always the same spot
- I feel that my arms (especially right one) get tired easily (e.g. when washing hair, typing on a keyboard), but I can still do all the daily activities, I just feel that my arms need to rest for a moment
- can also feel some kind of "stiffness" in both arms - as if they were stressed all the time
- I've measured my arms and can't see any differences, I have only noticed maybe a small, shallow "dent" (but only when I flex my elbow) next to the spot that is twitching but maybe it's been always like that, I have also noticed my skin on the right arm seems a bit "thinner" than on the left one, but can't see any obvious signs of atrophy - still I know only a doctor can judge this
- low activity tolerance - even the simplest exercises (e.g. yoga) make my whole body start shaking
- I have had number of other symptoms before (stiffness in limbs, numbness, tingling) which I know point away from ALS, but I'm not sure if this is all related. I have been diagnosed with latent tetany, but my doctor said twitching in the same spot is not really specific to tetany. They only asked me whether I was losing weight or had any issues with swallowing. I have lost a bit of weight, but that was probably normal because of a diet. I have seen another doctor recently and they ran a clinical examination on me, but I'm concerned that maybe they didn't think about ALS, I thought they wanted to rule out MS.
(video removed by mod, not helpful)
So here's my most important question:
Do you think, if I had that constant elbow twitching for 4-5 months now, I would have noticed some obvious failure/atrophy by now? Or is it still too early to say? I know it's hard to answer this, but what is your feeling? I know ALS progresses quickly, so I'm wondering if several months is a "safe" amount of time and if anything bad was to happen it would have happened by now? Or maybe you don't see anything worrisome in what I describe? (I never had an EMG) I have also read something about slightly slower progress among younger patients (I'm 29).
Sorry for taking your time, I would really appreciate hearing your thoughts on this.
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