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Rush714

Member
Joined
Oct 28, 2017
Messages
15
Reason
PALS
Diagnosis
09/2017
Country
US
State
CA
City
placentia
I have been on edaravone since October 2017, and will continue to stay on it. Has it helped, I don't know for sure but I am still here and since it is one of the only 2 treatment options approved by the FDA I will keep the faith!

Shaun
 

Doglady

Distinguished member
Joined
Aug 6, 2018
Messages
218
Reason
PALS
Diagnosis
04/2018
Country
US
State
MN
City
Minneapolis
I decided not to do Radicava because of the lifestyle implications of the infusion schedule. If an oral drug would have been an option i’d have given it a try. Good luck!!!
 

SEAMUS

New member
Joined
Jan 23, 2019
Messages
5
Reason
PALS
Diagnosis
01/2018
Country
IRE
State
County Galway
City
Galway
Hi folks thanks for continuing information. As I said the clinical trial coming up is on oral Edaravone so that may suit your lifestyle better if its something to consider Doglady. Again its your own decision on your own life choices.
Thanks again and KEEP FIGHTING
Seamus
 
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