- Jan 23, 2019
- County Galway
Hi first time on this forum. Seamus from Ireland diagnosed1year but symptoms about 4 years, 49 married 4 kids. What I would like to ask people is about Edaravone. It has been in use in the US since 2017. It is not available in Europe yet but there is a large clinical trial this year on the oral version of it. The clinical trial here in Europe called ADORE is looking at oral EDARAVONE in tablet form 3 times daily. They have conducted a phase 1/2 trial looking at safety which had similar side effects and it also came back with 60/80% bioavailability which means no drug holiday period and 2.8 times more drug administered per month. Here in Ireland they are recruiting early this year but the exact protocol has not been finalized. It sounds simple that if your getting 2.8 times the drug will it have 2.8 times the effect who knows but hopefully it might increase its potency. Can people who have used it pass on what they think of it ,does it work , does it make a difference, in other words is it worth trying. I also suffer from Asthma does that make a difference ? Any info you could pass on would be very helpful . Best wishes and keep fighting.