Concernfarther1
New member
- Joined
- Apr 23, 2022
- Messages
- 9
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Hello- first i want to say i pray for everyone affected by this terrible disease. My reason here is to see if anyone has experience with what i have and if this is early signs of bulbar als.
For 3 months i been mumbling speech more than in the past. I feel my tongue is too big for my mouth. Back in Feb when this started i went to see a neurologist. He ordered Emg/ncv upper and lower, ssep upper and lower, mri of cervical spine and mri of the brain. My test showed carpal tunnel in the right hand, mild ulnar compression right elbow. Mri showed cervial severe stenosis and cervial spondylosis myelopathy.
I originally went to the doctor for dizziness, was diagnosis with vertigo in June 2021. Was also having same balance issues and pain in right leg. My speaking was real reason for visit. The balance and issues walking he said is my CSM diagnosis , he said he doesn’t hear anything with my speaking and said i don’t have bulbar als. He didn’t do the emg part bc on my ncv my motor was normal. He said i have bad anxiety which i do.
My question for everyone is does this sound like bulbar als? I know it effects speech, i don’t have any swallowing issues. Just when i speak more people say what do i have to repeat myself. It’s more mumbling than slurring . I’m 38 yr old male. Very nervous this is early bulbar since i read about it and a ton of people my age on boards said it started with only mumbling and no other symptoms, is it possible i did the test too early? Should i demand the emg need part of the emg to be done? Any help with be appreciated
For 3 months i been mumbling speech more than in the past. I feel my tongue is too big for my mouth. Back in Feb when this started i went to see a neurologist. He ordered Emg/ncv upper and lower, ssep upper and lower, mri of cervical spine and mri of the brain. My test showed carpal tunnel in the right hand, mild ulnar compression right elbow. Mri showed cervial severe stenosis and cervial spondylosis myelopathy.
I originally went to the doctor for dizziness, was diagnosis with vertigo in June 2021. Was also having same balance issues and pain in right leg. My speaking was real reason for visit. The balance and issues walking he said is my CSM diagnosis , he said he doesn’t hear anything with my speaking and said i don’t have bulbar als. He didn’t do the emg part bc on my ncv my motor was normal. He said i have bad anxiety which i do.
My question for everyone is does this sound like bulbar als? I know it effects speech, i don’t have any swallowing issues. Just when i speak more people say what do i have to repeat myself. It’s more mumbling than slurring . I’m 38 yr old male. Very nervous this is early bulbar since i read about it and a ton of people my age on boards said it started with only mumbling and no other symptoms, is it possible i did the test too early? Should i demand the emg need part of the emg to be done? Any help with be appreciated