- Aug 23, 2021
- DX UMND/PLS
Good evening. I'm a PALS diagnosed with second opinion on 8/9/21. I am affected mostly in my left side with some weakness in my right. GJ tube placed 8/6 due to weight loss, dysphagia, gastroparesis, and malnutrition. I am having cervical spasms and weakness. For the last 2 weeks, my head "draws" to the left and my chin is dropping. It is getting more difficult to look straight ahead. Is this dystonia? Would I benefit from a neck brace to hold my head up? I would need something much stronger than a soft cervical collar. Thank you for any advice. I have a call into my neurologist but they are crazy busy and I haven't heard back.