suzanne1
New member
- Joined
- Nov 24, 2009
- Messages
- 7
- Reason
- Learn about ALS
- Country
- US
- State
- NY
- City
- NYC
I just go super scared. My background - have been twitching bodywide for 9 years. Seen m any neuros and was absolutely OK with a diagnosis of BFS. Then last November, my tip of my tongue began to twitch intermittently. I saw 2 neruos who said I was fine - normal clinical exams so normal they did not want to do an EMG. I worried about Bulbar ALS, and still do...but was getting better with it honestly.
i have no speech issues, no swallowing issues...no weakness anywhere. and totally normal clinical neuro exams - the last one 2 weeks ago.
then tonight, I was eating ice cream with my daughters, and about 3 min after eating ice cream, I blew my nose and some ice cream cam out in my nose blowing into the tissue. that has never happened - I looked it up and it says it is common in neuromuscular issues, called dysphagia ...
I am now crazy terrifies...any thoughts. was this an ealry symptom for any Bulbar onset people out there? thank you
i have no speech issues, no swallowing issues...no weakness anywhere. and totally normal clinical neuro exams - the last one 2 weeks ago.
then tonight, I was eating ice cream with my daughters, and about 3 min after eating ice cream, I blew my nose and some ice cream cam out in my nose blowing into the tissue. that has never happened - I looked it up and it says it is common in neuromuscular issues, called dysphagia ...
I am now crazy terrifies...any thoughts. was this an ealry symptom for any Bulbar onset people out there? thank you