AHands
Distinguished member
- Joined
- Dec 10, 2007
- Messages
- 206
- Reason
- PALS
- Country
- US
- State
- NC
- City
- Carrboro
re "When were you diagnosed with ALS?"
is there a formal process?
the 1st neuro i saw, back in '05, felt i had als but sent me for a 2nd opinion.
since then i've seen five, two of them lead als clinics.
#4, in nov '07 put me on riluzole and ordered a bunch of tests.
some of those tests didn't get run, so he reordered in mid-jan and i'm still waiting for the results.
#5 says it is als
my riluzole rx was written up with code "335.20" (ALS) in nov
so...am i "diagnosed"? i'm not sure. maybe '05, maybe nov-07, maybe "not yet"?
is there a formal process?
the 1st neuro i saw, back in '05, felt i had als but sent me for a 2nd opinion.
since then i've seen five, two of them lead als clinics.
#4, in nov '07 put me on riluzole and ordered a bunch of tests.
some of those tests didn't get run, so he reordered in mid-jan and i'm still waiting for the results.
#5 says it is als
my riluzole rx was written up with code "335.20" (ALS) in nov
so...am i "diagnosed"? i'm not sure. maybe '05, maybe nov-07, maybe "not yet"?