Mr. Bill
Member
- Joined
- Nov 24, 2008
- Messages
- 25
- Reason
- PALS
- Diagnosis
- 09/2004
- Country
- US
- State
- MN
- City
- Hometown
I am curious about what is the longest someone has seen a neuro before they were diagnosed with ALS?
My neuro says that if someone's PLS is going to turn into ALS, it will happen within three years.
I was originally diagnosed in August of 2004. I was referred to a Neuro at the U of M and he said it was more like PLS and was 90% sure.
This last fall, after four years, he changed the diagnosis to UMN dominant ALS.
I know that not everyone is the same but it seems like some of the people on here have had symptoms for several years before ALS was diagnosed.
Bill
My neuro says that if someone's PLS is going to turn into ALS, it will happen within three years.
I was originally diagnosed in August of 2004. I was referred to a Neuro at the U of M and he said it was more like PLS and was 90% sure.
This last fall, after four years, he changed the diagnosis to UMN dominant ALS.
I know that not everyone is the same but it seems like some of the people on here have had symptoms for several years before ALS was diagnosed.
Bill