tmasters
Senior member
- Joined
- Feb 19, 2008
- Messages
- 532
- Reason
- PALS
- Diagnosis
- 08/2008
- Country
- US
- State
- California
- City
- Anaheim
Today it's official. I went to the ALS clinic at UCLA and Dr. Graves gave me the bad news in a very subtle way. (I had to drag it out of him.)
So I've been showing symptoms of progressive weakness now since June '07 and after several neurologist visits and a couple visits to UCLA, I received what I didn't want, but what I knew in my heart was coming. It's just that I didn't know it was coming so soon.
Though I have presented LMN signs in the past, this is the first time that he's seen an increase in reflexes and some muscle stiffness (spacticity?). That, coupled with my failure to respond to IVIg, made his mind up.
On the bright side, I'm progressing very slowly and I feel pretty good and my spirits are pretty high. I still have a lot of living to do!
Thanks to everyone on this site for all the support and all the valuable information I've gotten this past 7 months.
Keep the faith,
-Tom
So I've been showing symptoms of progressive weakness now since June '07 and after several neurologist visits and a couple visits to UCLA, I received what I didn't want, but what I knew in my heart was coming. It's just that I didn't know it was coming so soon.
Though I have presented LMN signs in the past, this is the first time that he's seen an increase in reflexes and some muscle stiffness (spacticity?). That, coupled with my failure to respond to IVIg, made his mind up.
On the bright side, I'm progressing very slowly and I feel pretty good and my spirits are pretty high. I still have a lot of living to do!
Thanks to everyone on this site for all the support and all the valuable information I've gotten this past 7 months.
Keep the faith,
-Tom