- Aug 11, 2007
I finally called and i will be going to the ALS CLinic at Duke University on the 16th of October... The receptionist said depending on what the doc finds or does not find depends on how long i will be there, because they will order and do all the tests that day! If he feels it is ALS i will meet with caseworkers, and if it is not he will try to figure out the cause of the muscle problems. I could not believe all that his receptionist told me...... Now if he says not ALS, but lets see what is causing this i will be extremely happy! If he says, yes ALS lets help you i will be devastated but releived that i will be getting help because i am having a hard time holding down my job. Thanks for your responses on my advice question... I have a question for PALS, my new co-worker pulled me aside and asked if i had a problem with her or if i was upset, because i get real quiet and distant...... I realized that she did not know about my condition because i do not talk about it at work... I told her that i am exhausted by the end of the day, as she knows, but by the end of the week i am so sore and my muscles are so heavy and weak i could cry because all i want to do is rest. Even talking by then takes too much energy, so i get real quiet.... That is not good when you have to entertain eighteen children for eight hours straight...... ALso my emotions are getting worse, i try not to talk about things that upset me because i cannot rationally talk about them without breaking out i nto hives and crying... and this happens immediately.. I also break out in temper tantrums when stressed at home that end with uncontrollable crying, and i know in my head that it is crazy but i cant stop my reaction.... Once it is over i am fine and have to apologize to my hubby and kids..... It is wearing on them...... Does anybody else have these emotions? Its like my whole body feels tense and overwhelmed and bursts out, only with little cause.... I am not depressed, so i know it is not depression.... These tantrums are not always there, they are sudden.