Drug Cocktails what an intersting term
Dear Mel,
I remember when I first came across this terminology and like you I thought gee this might be the answer to my freinds problems and my prayers. Like you I asked the same question and I did not get any answers but I did come up with a few stories from others who have tried this concoction. In my freinds case he would take his Rilutek as perscribed, 2- 50mg of minocycline and then heres the trickey part, depending on the weight of the person you add the creatine. What I don't understand about this cocktail and a lot of other things about AlS is how come we have to find the answers from other people or research on our own when we have GPS or specialists that should be there to help us. In Tims case he was more or less told you have 2-5 years to live , see ya later. Now whether the cocktail works or not that question still seems to be up in the air. For some people they say they did see some improvement in other cases people said it was a waste of money since the drugs are very expensive and their symptoms only got worse. Another thing I have learned is that ALS hits people very differently, some of the more fortunate ones the disease seems to move more slowly where at times it almost seems stagnate, while others it moves so rapidly you wonder if everybody has the same thing. I don't know if this will be of any help to you but just maybe you should ask your Dr and you will have better luck then we did, I still try to keep a open mind that all Drs are not the same and that there are ones out there with hope and encouragement for our loved ones.
Good luck to you and your loved one
Kim ALS About Loving Someone :wink: