ARCG
Distinguished member
- Joined
- Oct 12, 2016
- Messages
- 218
- Reason
- Lost a loved one
- Diagnosis
- 1/2015
- Country
- US
- State
- TX
- City
- Houston
I am new to this forum. My husband was diagnosed several years ago, although looking back, I see the changes in his personality well before his diagnosis, but didn't know what it was at the time.
I try to take things one day at a time, but finding myself increasingly drained of energy. There are so many balls in the air simultaneously and so many people depending on me, I find myself feeling overwhelmed and drained.
Reading your posts helps, as I see that I am not the only one who feels this way.
Do you find that people want you to be 'happy' and try to cheer you up? In the past. I was generally a cheerful person and now that I am faced with navigating all the things that must be taken care of for my husband, I don't have time to make everyone else feel ok about what's happening. it takes all my energy to take care of him, make sure I have the right equipment, make changes to the house, meds, etc. etc., you all know what I am talking about. No one seems to get how emotionally draining this is. It's not just putting the lifts in place, it's what it means to see my once strong husband in a harness and know how he must be feeling. Every step of the way, every new system, breaks my heart.
I guess I just need to rant a little. I am also not a young woman and I worry about what will happen to him if something happens to me.
I try to take things one day at a time, but finding myself increasingly drained of energy. There are so many balls in the air simultaneously and so many people depending on me, I find myself feeling overwhelmed and drained.
Reading your posts helps, as I see that I am not the only one who feels this way.
Do you find that people want you to be 'happy' and try to cheer you up? In the past. I was generally a cheerful person and now that I am faced with navigating all the things that must be taken care of for my husband, I don't have time to make everyone else feel ok about what's happening. it takes all my energy to take care of him, make sure I have the right equipment, make changes to the house, meds, etc. etc., you all know what I am talking about. No one seems to get how emotionally draining this is. It's not just putting the lifts in place, it's what it means to see my once strong husband in a harness and know how he must be feeling. Every step of the way, every new system, breaks my heart.
I guess I just need to rant a little. I am also not a young woman and I worry about what will happen to him if something happens to me.