CaptainPlanet
Active member
- Joined
- Oct 26, 2014
- Messages
- 45
- Reason
- Learn about ALS
- Diagnosis
- 10/2014
- Country
- US
- State
- CA
- City
- San Pedro
Since my last post i've had some pretty scary developments with my breathing among other things.
because my doctor 'suspects ALS' after a battery of tests and EMG, I'm having a hard time putting into words what im experiencing particularly with my breathing.
My breathing ability seems to have a mind of it's own: Having many upswings of breathing strength followed by scary and weak downswings of difficulty drawing air in, and intense almost burning pain in my diaphragm.
I can usually tell when a downswing is coming on as my breathing effort will become weaker almost like a 'burnout' or 'fatigue' and this usually happens when I exert my voice or cough a lot.
Does this sound like any PALS that have breathing issues?
I'm only 27 and still am in denial that this could be ALS. The odds are just too much in my favor. Although, I read that very few respiratory onset cases are diagnosed in time.
Also, I have had to strain more and more each week to empty my bladder. It's like i'm losing the ability to push urine out of my bladder.
because my doctor 'suspects ALS' after a battery of tests and EMG, I'm having a hard time putting into words what im experiencing particularly with my breathing.
My breathing ability seems to have a mind of it's own: Having many upswings of breathing strength followed by scary and weak downswings of difficulty drawing air in, and intense almost burning pain in my diaphragm.
I can usually tell when a downswing is coming on as my breathing effort will become weaker almost like a 'burnout' or 'fatigue' and this usually happens when I exert my voice or cough a lot.
Does this sound like any PALS that have breathing issues?
I'm only 27 and still am in denial that this could be ALS. The odds are just too much in my favor. Although, I read that very few respiratory onset cases are diagnosed in time.
Also, I have had to strain more and more each week to empty my bladder. It's like i'm losing the ability to push urine out of my bladder.