Dot Nichols
Active member
- Joined
- Jan 30, 2022
- Messages
- 31
- Reason
- CALS
- Diagnosis
- 08/2021
- Country
- US
- State
- WA
- City
- Bellingham and Scottsdale
Hi. First question: I am a new member and don't know what the above icons are.....
My husband was diagnosed in WA, with ALS just before we were to leave for winter in Scottsdale, AZ. We made insurance changes so that he could get into an AZ clinic. We had one appointment with the director in early January and are now waiting for his April clinic appointment. Is that typical?
Meantime he chokes frequently throughout the day, more often at meals. Soft foods and thick soups help him not to bite the inside of his mouth and to swallow. We have a wheel chair, walker and recumbent trike which allow him to get around and so far, he transfers himself. One of his problems is getting in and out of bed and once he is in, he can't turn over. What can we do to help with that? Also, where can I get small white boards for him to write a word when I can't understand? I am very grateful for this option to get some help. I have wonderful friends, but they don't have a clue what we are dealing with. Thank you! Dot N
My husband was diagnosed in WA, with ALS just before we were to leave for winter in Scottsdale, AZ. We made insurance changes so that he could get into an AZ clinic. We had one appointment with the director in early January and are now waiting for his April clinic appointment. Is that typical?
Meantime he chokes frequently throughout the day, more often at meals. Soft foods and thick soups help him not to bite the inside of his mouth and to swallow. We have a wheel chair, walker and recumbent trike which allow him to get around and so far, he transfers himself. One of his problems is getting in and out of bed and once he is in, he can't turn over. What can we do to help with that? Also, where can I get small white boards for him to write a word when I can't understand? I am very grateful for this option to get some help. I have wonderful friends, but they don't have a clue what we are dealing with. Thank you! Dot N
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