dldugan
Distinguished member
- Joined
- Oct 5, 2018
- Messages
- 203
- Reason
- PALS
- Diagnosis
- 09/2018
- Country
- US
- State
- illinois
- City
- Mahomet
The ALS Clinic and some places on this forum indicates not to lose weight.
One of the first symptoms I noticed was that I was losing a little weight, but was gaining around the middle. It seemed to me that this was the result of atrophy and I conveyed those thoughts to my first neurologist and to my PCP for nearly 2 years. It was like they weren’t listening. In hindsight it is probably a good thing that I wasn’t diagnosed for 2 years. For that time I was was not aware I was living with a terminal illness and life was moving happily forward.
Now after being diagnosed I am eating less and still gaining around the waist. But atrophy is keeping my weight about the same. As my strength is declining I am burning less calories.
I am of the opinion that it would be better to ignore the advice and lose some weight around the waist. The problem is, how much should I lose?
One of the first symptoms I noticed was that I was losing a little weight, but was gaining around the middle. It seemed to me that this was the result of atrophy and I conveyed those thoughts to my first neurologist and to my PCP for nearly 2 years. It was like they weren’t listening. In hindsight it is probably a good thing that I wasn’t diagnosed for 2 years. For that time I was was not aware I was living with a terminal illness and life was moving happily forward.
Now after being diagnosed I am eating less and still gaining around the waist. But atrophy is keeping my weight about the same. As my strength is declining I am burning less calories.
I am of the opinion that it would be better to ignore the advice and lose some weight around the waist. The problem is, how much should I lose?