shellbell622
New member
- Joined
- Dec 3, 2021
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Hello. I have read the pinned post and many threads here before posting. I am 39 female and have 4 littles. My health issues started 4 weeks after I had my 4th baby last year.
One night I started to feel weird and that was the beginning of 7 months of dizziness, balance problems, headaches, ringing in my ears, and fatigue. Docs said I was just sleep deprived due to a new baby. Once my baby had been sleeping though the night the symptoms were still persistent. MRI of brain found nonspecific white matter hyperintensities but docs said that could still be normal or MS.
Fast forward a few more months to mid November. Started feeling weak like I needed to eat, shaky in my arms and legs but not actually physically shaking. I was not really concerned with my symptoms at this point as I figured I had some sort of deficiency. All labs came back fine.
Here is where my symptoms turned concerning and the reason for my post. A week later I woke up with my leg muscles feeling tight and almost like Charlie horses. They were spasms and cramps. A few days later it moved into my arms. Now a month later I am still left with weird muscle issues. I never know which day is going to be in which muscle. They will be stiff and will feel like I just did a workout or climbed a bunch of stairs.
My chiro confirmed that I have muscle fasciculations. They are all over in random places. The muscle soreness has moved into my back muscles as well. X-ray of my neck by chiro shows a straight cervical spine instead of a curve. My chiro thinks these issues are being caused by my spinal cord being pulled tight from my no curve. My MD doesn’t think so.
My MD orders full MRI of my spine and brain. Did them all this week and the results came back with some mild disc degeneration but my doc said normal wear and tear and referred me to a neurologist. My appointment is not until mid February.
Now after all that my questions are around warning signs. Are there any? I know I’ve read that there is no pain due to motor vs. sensory but from what I can tell of your responses to peoples threads is that is once signal is lost. All of the symptoms I mention above starting a year ago are still with me everyday. I don’t know what I am going to wake up with that day. Some days none of the vertigo and headaches and ear ringing but still all the muscle issues, some days I can only do the very basics to take care of my littles until my wonderful husband gets home to relieve me.
Most recently this week it’s tight sore muscles for no reason. The soreness isn’t super painful, just like I said, I have worked out but did not. Non painful Twitches concern me. I really have not wanted to post here as I respect you and all of your time but I just don't know what to think with my doc’s not agreeing and I fight daily trying to ignore what’s happening because I have a lot to do with the kiddos. My doc was initially heavy on the MS but my scans have not shown anything definitive.
There is no environmental reason for me to have all these muscle issues that I have never had in my life and I have read as much as I can read about ALS. All the websites contradict each other so my hope is someone can answer whether or not there are warning signs before muscles stop working. Thank you all in advance for your time.
One night I started to feel weird and that was the beginning of 7 months of dizziness, balance problems, headaches, ringing in my ears, and fatigue. Docs said I was just sleep deprived due to a new baby. Once my baby had been sleeping though the night the symptoms were still persistent. MRI of brain found nonspecific white matter hyperintensities but docs said that could still be normal or MS.
Fast forward a few more months to mid November. Started feeling weak like I needed to eat, shaky in my arms and legs but not actually physically shaking. I was not really concerned with my symptoms at this point as I figured I had some sort of deficiency. All labs came back fine.
Here is where my symptoms turned concerning and the reason for my post. A week later I woke up with my leg muscles feeling tight and almost like Charlie horses. They were spasms and cramps. A few days later it moved into my arms. Now a month later I am still left with weird muscle issues. I never know which day is going to be in which muscle. They will be stiff and will feel like I just did a workout or climbed a bunch of stairs.
My chiro confirmed that I have muscle fasciculations. They are all over in random places. The muscle soreness has moved into my back muscles as well. X-ray of my neck by chiro shows a straight cervical spine instead of a curve. My chiro thinks these issues are being caused by my spinal cord being pulled tight from my no curve. My MD doesn’t think so.
My MD orders full MRI of my spine and brain. Did them all this week and the results came back with some mild disc degeneration but my doc said normal wear and tear and referred me to a neurologist. My appointment is not until mid February.
Now after all that my questions are around warning signs. Are there any? I know I’ve read that there is no pain due to motor vs. sensory but from what I can tell of your responses to peoples threads is that is once signal is lost. All of the symptoms I mention above starting a year ago are still with me everyday. I don’t know what I am going to wake up with that day. Some days none of the vertigo and headaches and ear ringing but still all the muscle issues, some days I can only do the very basics to take care of my littles until my wonderful husband gets home to relieve me.
Most recently this week it’s tight sore muscles for no reason. The soreness isn’t super painful, just like I said, I have worked out but did not. Non painful Twitches concern me. I really have not wanted to post here as I respect you and all of your time but I just don't know what to think with my doc’s not agreeing and I fight daily trying to ignore what’s happening because I have a lot to do with the kiddos. My doc was initially heavy on the MS but my scans have not shown anything definitive.
There is no environmental reason for me to have all these muscle issues that I have never had in my life and I have read as much as I can read about ALS. All the websites contradict each other so my hope is someone can answer whether or not there are warning signs before muscles stop working. Thank you all in advance for your time.
Last edited by a moderator: