joelc
Moderator emeritus
- Joined
- Jul 15, 2006
- Messages
- 2,835
- Reason
- PALS
- Diagnosis
- 09/2005
- Country
- CA
- State
- BC
- City
- Abbotsford
I just posted this one my web site.
This is a subject that disturbs me greatly. I find there are too many people who focus on the fact they are going to die. They are convinced they are dying and will die within a few months or years.
While there is that possibility, everyone has to die sometime, I still believe that ALS does not have to be fatal! This is also supported by medical professionals who I have come to respect. If we are willing, and able, to make use of the current technology available to us we can live indefinitely. The most common reason for PALS to die is from respiratory failure, so if you are willing to get a trache and vent death can be avoided.
I have discussed the subject of getting a trache, or not getting a trache, in another page so I am not going to expand on that here.
Lately I have corresponded with far too many people who have given up and are focused on their ultimate demise. (their belief)
They are devastated that they will not live to see their children grow, graduate, get married and see their grandchildren.
This does not have to be the way things turn out!
As I have stated above, if you are willing, and able, to get a trache and vent, a PEG (feeding tube) and use devices like a power wheelchair then life can still be fruitful and fulfilling. Life does not automatically have to be over!
Don’t let anyone tell you differently! It is entirely up to you. This is a choice you have to make and then never look back!
I am reading more and more devastating articles written by caregivers and family members than people who actually have ALS. They are destroyed by the ALS diagnosis their loved one has received and can’t quit crying. They are angry and extremely bitter. If you are a caregiver who is guilty of this then please stop and change the way you look at ALS. You have a great responsibility to be strong for the one who has ALS, focus on the positive and get on with helping them enjoy each day as best as possible.
There will always be “down” days and that is to be expected whether you have ALS or not, but don’t make this the norm.
I would also like to slap some PALS across the side of their heads for always being angry and not being able to rise above their depression. There is medication to help with this if it is a result of Emotional Lability.
Don’t believe anyone who tells you that you have to die because of ALS.
You don’t unless you decide you don’t want to continue living. That is another topic I have discussed on a different page.
Get on with Living and Enjoying each day to the Fullest. There is still a lot of Living to be done!
God Bless Each and Everyone of Us!
This is a subject that disturbs me greatly. I find there are too many people who focus on the fact they are going to die. They are convinced they are dying and will die within a few months or years.
While there is that possibility, everyone has to die sometime, I still believe that ALS does not have to be fatal! This is also supported by medical professionals who I have come to respect. If we are willing, and able, to make use of the current technology available to us we can live indefinitely. The most common reason for PALS to die is from respiratory failure, so if you are willing to get a trache and vent death can be avoided.
I have discussed the subject of getting a trache, or not getting a trache, in another page so I am not going to expand on that here.
Lately I have corresponded with far too many people who have given up and are focused on their ultimate demise. (their belief)
They are devastated that they will not live to see their children grow, graduate, get married and see their grandchildren.
This does not have to be the way things turn out!
As I have stated above, if you are willing, and able, to get a trache and vent, a PEG (feeding tube) and use devices like a power wheelchair then life can still be fruitful and fulfilling. Life does not automatically have to be over!
Don’t let anyone tell you differently! It is entirely up to you. This is a choice you have to make and then never look back!
I am reading more and more devastating articles written by caregivers and family members than people who actually have ALS. They are destroyed by the ALS diagnosis their loved one has received and can’t quit crying. They are angry and extremely bitter. If you are a caregiver who is guilty of this then please stop and change the way you look at ALS. You have a great responsibility to be strong for the one who has ALS, focus on the positive and get on with helping them enjoy each day as best as possible.
There will always be “down” days and that is to be expected whether you have ALS or not, but don’t make this the norm.
I would also like to slap some PALS across the side of their heads for always being angry and not being able to rise above their depression. There is medication to help with this if it is a result of Emotional Lability.
Don’t believe anyone who tells you that you have to die because of ALS.
You don’t unless you decide you don’t want to continue living. That is another topic I have discussed on a different page.
Get on with Living and Enjoying each day to the Fullest. There is still a lot of Living to be done!
God Bless Each and Everyone of Us!