Bfloyd
Member
- Joined
- Apr 8, 2012
- Messages
- 20
- Reason
- Learn about ALS
- Country
- US
- State
- Wa
- City
- Richland
Good morning ,
Last time I was here I was so angry at the Drs I was rude. And I apologize for that. I can't figure out if this is my third headed into my 4th winter with an issue that's progressed pretty quick.
I have stayed off internet since my meltdown and actually thought I was going crazy.
Symptoms hit me smack in middle of peri menopause. But medabolic test have been done and ruled out.
The last couple years my first symptom was slight weakness but nothing like I've seem on here. My drs thought I had lipodystrophy. The main symptom was twitching and I actually finally was ok with the BFS dianosis I was given.
My muscle tone has gotten worse and in last 6 months. Ive had my hearing aid remolded for 3rd time. I've had to get 2 new custom shoes inserts, and am now down to size 7 not 8 shoe size.
There was only a very slight change in my Nerve conduction
Test and was told I had tarsal tunnel.
The biggest change is my bones or muscle are moving pretty quick and my mouth where I had perfect bit my top teeth are covering bottom and my dentist has confirmed peridontal disease.
She asked me to revisit the Dr and I said no way can 3 neuro be wrong.
I was told if I was not losing weight I was not losing muscle. In fact I've actually gained 7 lbs eating poorly.
I was sent to Rhumatologist by Nuero since Lupus runs in family.
The only thing he found was low IgG and spot protein in my urin but not enough to worry about.
I feel like I've lost padding over joints and bones. I cannot go to another Dr. Last one was Rhumalogist and the low IgG and spot urine test just are not worth even looking into.
If my symptoms started 3 years ago and I'm still passing stengh test surely this cannot be ALS. I'm still standing , walking , and I'm actually use to the BFS now. What I'm concerned about is the loss of padding.
One thing that's happened that's a positive is my chronic pain has subsided. It's like there is no padding to have pain in.
I know there are hundreds of diseases that can mimic ALS I guess Im curious If anyone had heard of low antibodys and spot protein in 24 hr urin.
I'm at a loss and my family Dr who's a Nurse Practioner is at a loss. The only Dr I've seen is her and Rhumalogist since I was on here last. After my rant last time I said I'd never go on again.
I hope this makes a small amount of sense. Should I bother asking the Nuero to check me again With new test results of urin test and IgG test. I didn't even bother sending them to his office.
Last time I was here I was so angry at the Drs I was rude. And I apologize for that. I can't figure out if this is my third headed into my 4th winter with an issue that's progressed pretty quick.
I have stayed off internet since my meltdown and actually thought I was going crazy.
Symptoms hit me smack in middle of peri menopause. But medabolic test have been done and ruled out.
The last couple years my first symptom was slight weakness but nothing like I've seem on here. My drs thought I had lipodystrophy. The main symptom was twitching and I actually finally was ok with the BFS dianosis I was given.
My muscle tone has gotten worse and in last 6 months. Ive had my hearing aid remolded for 3rd time. I've had to get 2 new custom shoes inserts, and am now down to size 7 not 8 shoe size.
There was only a very slight change in my Nerve conduction
Test and was told I had tarsal tunnel.
The biggest change is my bones or muscle are moving pretty quick and my mouth where I had perfect bit my top teeth are covering bottom and my dentist has confirmed peridontal disease.
She asked me to revisit the Dr and I said no way can 3 neuro be wrong.
I was told if I was not losing weight I was not losing muscle. In fact I've actually gained 7 lbs eating poorly.
I was sent to Rhumatologist by Nuero since Lupus runs in family.
The only thing he found was low IgG and spot protein in my urin but not enough to worry about.
I feel like I've lost padding over joints and bones. I cannot go to another Dr. Last one was Rhumalogist and the low IgG and spot urine test just are not worth even looking into.
If my symptoms started 3 years ago and I'm still passing stengh test surely this cannot be ALS. I'm still standing , walking , and I'm actually use to the BFS now. What I'm concerned about is the loss of padding.
One thing that's happened that's a positive is my chronic pain has subsided. It's like there is no padding to have pain in.
I know there are hundreds of diseases that can mimic ALS I guess Im curious If anyone had heard of low antibodys and spot protein in 24 hr urin.
I'm at a loss and my family Dr who's a Nurse Practioner is at a loss. The only Dr I've seen is her and Rhumalogist since I was on here last. After my rant last time I said I'd never go on again.
I hope this makes a small amount of sense. Should I bother asking the Nuero to check me again With new test results of urin test and IgG test. I didn't even bother sending them to his office.