j100f
New member
- Joined
- Jan 17, 2024
- Messages
- 8
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Hi Everyone,
In August of 2023 I woke up with terrible leg pain in hamstrings by November the pain wasn't getting better. I saw a general nuerologist, had an emg which was normal he said its benign and not to worry. By December the pain started to subside ,but I started having weakness, tremors, muscle twitching and swallowing problems.
I then saw a nueromusclar specialist in January 2024 who sent me to an ent who diagnosed me with muscle tension dysphonia, the nueromusclar specialist did an emg, ran a ton of bloodwork, did some genetic testing and it all came back normal. I've been getting weaker in my arms and legs ever since, I have developed slight tremors in my hands and jaw since then. The nuerologist is going to do another emg in 2 weeks. I asked the nuerologist could this be als, she said she isn't sure, let's see what the emg shows. I haven't fallen, but I used to be very athletic could easily lift 20lbs weights, im now struggling with 10lbs weights, my arms and legs start to shake if I put any type of resistance on them and swallowing isn't normal, I can get food down, but swallowing saliva can be difficult, especially at night.This January would be 18 months since all this started, if my emg is normal at this point , could it still be als?
Thank you for listening
In August of 2023 I woke up with terrible leg pain in hamstrings by November the pain wasn't getting better. I saw a general nuerologist, had an emg which was normal he said its benign and not to worry. By December the pain started to subside ,but I started having weakness, tremors, muscle twitching and swallowing problems.
I then saw a nueromusclar specialist in January 2024 who sent me to an ent who diagnosed me with muscle tension dysphonia, the nueromusclar specialist did an emg, ran a ton of bloodwork, did some genetic testing and it all came back normal. I've been getting weaker in my arms and legs ever since, I have developed slight tremors in my hands and jaw since then. The nuerologist is going to do another emg in 2 weeks. I asked the nuerologist could this be als, she said she isn't sure, let's see what the emg shows. I haven't fallen, but I used to be very athletic could easily lift 20lbs weights, im now struggling with 10lbs weights, my arms and legs start to shake if I put any type of resistance on them and swallowing isn't normal, I can get food down, but swallowing saliva can be difficult, especially at night.This January would be 18 months since all this started, if my emg is normal at this point , could it still be als?
Thank you for listening