Does this sound like ALS?

[katiegrace]

Hi everyone! Really glad I found this page. I went down the unfortunate rabbit hole of als and am having a hard time pulling myself out of it.

I am a 28 year old Female. A month ago, i started getting dizzy. That went on for a week, and made me really worried, and then my doctor found fluid on my ear and said I probably had Eustacian Tube Dysfunction. I have been on a prescribed nose spray since then and have been much better, other than I have had a sore throat the last couple of days. But, during all of this, I started having body wide twitching. It started with an eye twitch, that spread to all over my body. It is all the time. Atleast 1 twitch in a random body part every 3-5 minutes. Sometimes there more spread out. Sometimes they are constant, and sometimes they are not as often. But, I can’t get them to go away.

I saw neurology who wasn’t too worried as I have no clinical weakness, but she ordered an EMG, probably just to make me feel better. However, the EMG is scheduled for so far out so I have lots of time to think and Worry about it. Does any of this sound like ALS?

 

[ShiftKicker]

Hi there-

You list symptoms that indicate something other than ALS. Please read here: Read Before Posting. Sounds to me more like a post viral issue, particularly as you state sore throat and ear issues. Covid can also cause a variety of odd and lingering symptoms, so have a read here too: Covid19 and Neurological Symptoms.

Take care

 

[lgelb]

Eye twitching is most often affected dehydration and/or stress, which can easily spread around. Eustachian tube dysfunction will also benefit from adequate hydration and some kind of walking/movement every day.

There is no reason to think of ALS.

 

[katiegrace]

Hi! Coming back with one more question… the twitching is still present, but honestly seems to have improved some. I have noticed in my calves and sometimes my thighs, when I start to walk, they are tight and my muscles holds for just a second, and then releases. Is that what spasticity feels like? Would it even show up in both legs like that if it was ALS? Thanks for all the help.

 

[lgelb]

No and no. Spasticity keeps you from accomplishing movement the way you used to. If your muscles are starting off stiff when you want to use them for a walk, I'd make sure you're stretching in the morning and maybe a little before walking, especially if you're doing a lot of sitting in between. The Essentrics videos (formerly "classical stretch"), many of which are free on their YouTube channel, are good.