JohnWachinzjy
New member
- Joined
- Oct 26, 2020
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- DK
- State
- DK
- City
- Copenhagen
Hello.
I'm 27/m.
First of all thanks for all members of this forum for all the good things you do on this platform.
2 months ago I started to feel my tongue is a bit off. And had trouble swallowing(mainly saliva and liquids, they seems like stuck at the back of my throat). Apart from that I had a lot of fasiculations all over the place but mainly in my upper lip, legs and some in arms.They are not constant but upper lip one usually starts when i brush my teeth or when I actively use it. Overall my muscles are easily fatigued. Especially jaw and tights(maybe because i use this two muscles often).
Apart from that I have mild weakness in my right arm and my foot. Mostly in my ring and pinky fingers.
But i can still do everything.
When I went to neurologist she stated that my power is fine and I don't seem to be ALS patient yet, and sent me to EMG/MRI.
Blood work showed CK levels of 65(which is not even close to upper bond). Other than that everything was fine.
Neck MRI show some disk bulge in C5-C6 and C6-C7.
EMG was done only on my arms(no bulbar muscles, 5 muscles tested(4 on right side, 2 on left, including both deltoids)) and conclusion isits my translation so sorry if i mistake some grammar)
"
F-waves on left and right side have increased percentage of blocks.
M-responses are normal.
According to needle EMG no spontanious denervation activity has been recorded in observed muscles.
No fasciculations are observed in muscles tested during EMG.
In all muscles tested registered MUPs with decreased amplitude and decreased duration.
Conclusion: Results suggest chronic C8 nerve root affection on the right side.
"
Neurologist who performed EMG wasnt that worried.
When I went to my doctor she said that without clinical symptoms of ALS my EMG shouldnt be worrying. And did some quick test of my muscles all of which was pretty fine. And sent me to do some additional blood work.
My symptoms still persists, so I want to ask advice on should I seek the second opinion, or just continue to work with my doctor. Mainly Im worried they didnt test bulbar muscles, however deltoids were tested. And its as close as they were to the bulbar area.
And the second question is does my EMG results have abnormalities related to ALS?
Thanks, I appreciate your opinion and really thankful for that opportunity to ask.
I'm 27/m.
First of all thanks for all members of this forum for all the good things you do on this platform.
2 months ago I started to feel my tongue is a bit off. And had trouble swallowing(mainly saliva and liquids, they seems like stuck at the back of my throat). Apart from that I had a lot of fasiculations all over the place but mainly in my upper lip, legs and some in arms.They are not constant but upper lip one usually starts when i brush my teeth or when I actively use it. Overall my muscles are easily fatigued. Especially jaw and tights(maybe because i use this two muscles often).
Apart from that I have mild weakness in my right arm and my foot. Mostly in my ring and pinky fingers.
But i can still do everything.
When I went to neurologist she stated that my power is fine and I don't seem to be ALS patient yet, and sent me to EMG/MRI.
Blood work showed CK levels of 65(which is not even close to upper bond). Other than that everything was fine.
Neck MRI show some disk bulge in C5-C6 and C6-C7.
EMG was done only on my arms(no bulbar muscles, 5 muscles tested(4 on right side, 2 on left, including both deltoids)) and conclusion isits my translation so sorry if i mistake some grammar)
"
F-waves on left and right side have increased percentage of blocks.
M-responses are normal.
According to needle EMG no spontanious denervation activity has been recorded in observed muscles.
No fasciculations are observed in muscles tested during EMG.
In all muscles tested registered MUPs with decreased amplitude and decreased duration.
Conclusion: Results suggest chronic C8 nerve root affection on the right side.
"
Neurologist who performed EMG wasnt that worried.
When I went to my doctor she said that without clinical symptoms of ALS my EMG shouldnt be worrying. And did some quick test of my muscles all of which was pretty fine. And sent me to do some additional blood work.
My symptoms still persists, so I want to ask advice on should I seek the second opinion, or just continue to work with my doctor. Mainly Im worried they didnt test bulbar muscles, however deltoids were tested. And its as close as they were to the bulbar area.
And the second question is does my EMG results have abnormalities related to ALS?
Thanks, I appreciate your opinion and really thankful for that opportunity to ask.