Does anyone have a child with ALS?

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suvopa01

New member
Joined
Mar 17, 2007
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4
Reason
PALS
Country
US
State
Mi
City
Redford
The doctor thinks my 15 year old son may have ALS. Does anyone have any information about a child with ALS? We have been through testing for the past 4 months and we will be seeing our 4th neurologist tomorrow. My husband and I are becoming very concerned.....please, if you have any information on a child with ALS we would love to hear from you.
 
Hi suvopa,

This must be an anguishing period for you. I have been reading these forums for 6+ years and the youngest PALS I've heard of was diagnosed at 18. Fifteen would be extraordinary. Good luck on further testing.

John
 
Hi John,

Thanks for your wishes, I'm not sure I know what PALS stands for.

Pat
 
Sorry for the jargon. PALS stands for "Person with Amyotrophic Lateral Sclerosis".
 
The youngest person that had als in the USA was believe it or not only three years of age, terrible I know.
 
I just posted a few days ago...my niece was 11 when symtpoms first arose. In 8 short months, she was almost totally paralyzed and needed a ventilator.
I will PM you.

Mike
 
Mike i went for the mycoplasma blood test IVIg and IGG they didnt do the culture Pat
 
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