Does anyone have a child with ALS?

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suvopa01

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Joined
Mar 17, 2007
Messages
4
Reason
PALS
Country
US
State
Mi
City
Redford
The doctor thinks my 15 year old son may have ALS. Does anyone have any information about a child with ALS? We have been through testing for the past 4 months and we will be seeing our 4th neurologist tomorrow. My husband and I are becoming very concerned.....please, if you have any information on a child with ALS we would love to hear from you.
 

John1

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Joined
Feb 25, 2006
Messages
1,028
Diagnosis
10/2000
Country
CA
State
NL
City
Newfoundland
Hi suvopa,

This must be an anguishing period for you. I have been reading these forums for 6+ years and the youngest PALS I've heard of was diagnosed at 18. Fifteen would be extraordinary. Good luck on further testing.

John
 

suvopa01

New member
Joined
Mar 17, 2007
Messages
4
Reason
PALS
Country
US
State
Mi
City
Redford
Hi John,

Thanks for your wishes, I'm not sure I know what PALS stands for.

Pat
 

John1

Very helpful member
Joined
Feb 25, 2006
Messages
1,028
Diagnosis
10/2000
Country
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City
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Sorry for the jargon. PALS stands for "Person with Amyotrophic Lateral Sclerosis".
 

BWk

Distinguished member
Joined
Jun 6, 2006
Messages
113
Reason
PALS
Country
grant
State
new mexico
City
silver city
The youngest person that had als in the USA was believe it or not only three years of age, terrible I know.
 

mikej2323

Member
Joined
Mar 5, 2007
Messages
17
Reason
PALS
Country
US
State
IA
City
Indianola
I just posted a few days ago...my niece was 11 when symtpoms first arose. In 8 short months, she was almost totally paralyzed and needed a ventilator.
I will PM you.

Mike
 

patricia1

Very helpful member
Joined
Sep 18, 2006
Messages
1,149
Reason
PALS
Diagnosis
7/1999
Country
US
State
newjersey
City
lopatcong NJ
Mike i went for the mycoplasma blood test IVIg and IGG they didnt do the culture Pat
 
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