Does anyone feel this way?

Not open for further replies.


Distinguished member
Dec 12, 2006
Learn about ALS

Does anyone with ALS ever feel like the whole thing is unreal? Like it is all a dream you can't wake up from?

I think I can speak for most people here that we have all felt that way at one time or another. Some it takes quite a while to get rid of the feeling but sooner or later you have to wake up and face reality. AL.
Edna May

Yes I can relate to that, at least once a day I have that feeling, but then all my symptoms remind me, I am not dreaming and get back to reality. but it is nice to day dream once in while. EM
The people on this forum are just the greatest. I have learned more here than on any other ALS forum, and even the six doctors I have seen. This is the honest truth. You're right of course AL, but I like to day dream like Edna does.

I know that sometimes my dad looked at the whole thing in a detached scientific manner.
He was his own subject in some biological experiment.
He'd point out his symptoms, calmly explaining why they were occuring...
Hi Emjoi. I think I do that too. People look at me as if I had two heads when I calmly explain what is happening but it is a way of taking control when my body has a mind of its own and is out of control. Also, I believe it helps everyone in some way. Someone on another thread said it best: people react to how WE are reacting. If we remain calm and matter-of-fact then those we love will feel calmer, too.
It's been almost a year since my sister was diagnosed, but it still seems unreal at times. I often describe it sort of like Dallas. I'm showing my age here, but remember that one season of the TV show was all just a dream. I know that I won't wake up, find Bobby Ewing in my shower and realize that this whole year was just a dream...:)

Hi Marcia - I can think of someone other than Bobby Ewing I'd like to find hanging aroudn my house!:-D
You must be thinking about me Cindy. Right? LOL.
I have feelings like everyone else has als and the docs. are wroung about me, then reality hits. i have those tingles in my lips, get up to walk and stiffness reminds me. Some weeks I cry, the next week i feel like alice in wounderland. :-? One thing for sure we have alot in common. God Bless jf :-D
Hi Janf,

I have cried only once. But I have the tingles in my lips, and when I stand up, my legs are terribly stiff. I don't know how much longer I will be able to stand, not much longer I'm sure. Alice in Wonderland is just like how I feel. We do have a lot in common.

God Bless,

To Al: Why of course I was thinking of you, dear! Who else?:roll:
Not open for further replies.