Does ability to breathe occur in PBP

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Idaho2790

Distinguished member
Joined
Dec 22, 2017
Messages
150
Reason
PALS
Diagnosis
01/2018
Country
US
State
Idaho
I was just diagnosed with Progressive Bulbar Palsy about a month ago. Was told by the ALS Clinic that my limbs were good and might remain that way for another year or two. Within this last month, though, I seem to have more of a problem breathing. This is more when I try to breathe through my nose than with my mouth open. Is there a test for breathing that I can anticipate when I return to UCSF In April? No one mentioned that as a possibility, although I do read on this forum that many people are using a BiPap. This has not been suggested or even mentioned.. thanks for the help.
 

pittsburghgal

Senior member
Joined
Jan 7, 2016
Messages
518
Reason
CALS
Diagnosis
11/2011
Country
US
State
PA
Hi, Idaho,

You should have a pulmonary function test to evaluate your breathing. Definitely tell your doctor about your breathing issues and request this test. The results of this test should indicate whether you should be on bipap.

Sharon
 

KimT

Forum Supporter
Extremely helpful member
Joined
Nov 18, 2014
Messages
3,519
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
Make sure you get a complete pulmonary function test that includes evaluating your breathing muscles as well as everything else.
 
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