sarah said:
My husband went to his regular 3 month doctor visit today. He has a hard time sitting up for to long, and we were at the doc's for 1 1/2 hours. We almost left because chris was getting to sore sitting in his wheel chair. My question is, what will happen when he cannot sit in his wheelchair any longer? He is almost getting to that point. He has to see the doc, but if we have no way of getting him there what do we do? Just wondering if anyone had experience in this situation?
Sarah
Hi, Sarah! Sorry to hear about your husband. May God give you the strength to care for him. Okay, this is what Hospice told me when my son was too weak to get up. First let me tell you that my son passed 15 mpnths after diagnosed, He was diagnosed in March 29, 2006, and he was gone by June 3, 2007. It was such a sad experience for me, and the family. I am having a hard time typing right now, because every time when I think or talk about it, it just tears me up. I just don't know why these terrible things happen. When my son told me what the doctor had told him after diagnosed, it almost killed me. I could not believe what I was hearing. My mind blacked out for a few seconds , then I lost it, I lost it completely. My husband had a hard time holding me down. I wanted to run out of the house. Getting in my car, and taking off occurred to me. Then I stopped for a second, and thought about my ailing son, I thought to myself, "He needs me!" I was devastated. I fell into a deep, deep depression. I even started having strange dreams. It was my son that cal,ed me down. He told me to please remain calm. He told me he was alright with it, and that he was not afraid, but hey, we are all human. I know he told me that so I wouldn't worry, but I did worry, a whole lot. I miss my baby so much. There isn't a day that goes by,, that I don't think about him. I think about him ALL THE TIME!
Okay, let me tell you what hospice said. When these folks get too weak to get around they will send a doc to the house to see him. That's what I was told. My babt did not live long enough to be seen by hospice. They came by my house on June 2, 2007, and the following evening my son passed. Talking about a big heart break! My baby he is in heaven! I must quit, because it hurts so. May God bless you nicw folks, and I will say a prayer for all you guys on this forum, every night! God bless!
xoxoxo,
Irma