Emanol
Active member
- Joined
- Apr 3, 2018
- Messages
- 67
- Reason
- Loved one DX
- Diagnosis
- 09/2017
- Country
- SP
- State
- NY
- City
- Lugo
Hello everyone,
After some years with UMN dominant ALS, doctors finally suggested my dad to get a PEG. Apparently, they found out he is no longer swallowing properly and there are food remains.
He took it quite badly, since he really loves eating. He has not lost any weight since he began with ALS symptoms back in 2017 and his breathing remains unaffected.
My question is: do you think there is any room with doctors to delay the procedure? Or do you recommend he do is instructed? It's just hard for him, I think. Eating is one of the things that motivates him during the day, and I worry about losing that. Also, since there is no weight loss, I imagine it might be possible to wait, but wanted to defer to the people in the forum to hear their experiences...
Thank you so much for your help, time, and energies.
After some years with UMN dominant ALS, doctors finally suggested my dad to get a PEG. Apparently, they found out he is no longer swallowing properly and there are food remains.
He took it quite badly, since he really loves eating. He has not lost any weight since he began with ALS symptoms back in 2017 and his breathing remains unaffected.
My question is: do you think there is any room with doctors to delay the procedure? Or do you recommend he do is instructed? It's just hard for him, I think. Eating is one of the things that motivates him during the day, and I worry about losing that. Also, since there is no weight loss, I imagine it might be possible to wait, but wanted to defer to the people in the forum to hear their experiences...
Thank you so much for your help, time, and energies.