- Jun 16, 2021
- Learn about ALS
Hi there. I have been suffering with swallowing difficulty for the past 3-4 months. It started with feeling as though I momentarily forgot how to swallow but has since progressed in to the feeling of too much saliva in my mouth and my muscles in the throat not feeling like they can keep up with the urge to swallow. My speech is generally ok but I feel as the day goes on, the muscles in my throat feel strained and my voice has to try hard to be louder. The swallowing difficulties ease off but seem to be worse on an evening. I also struggle with initiating a swallow occasionally. I’ve been to see the doctor and have been sent for a barium swallow. What worried me is that he mentioned bulbar onset ALS which I don’t think was an official diagnosis but seemed to be the thing he was most worried about. I dont struggle with food or drink, mainly saliva and i have a lot of mucus in the back of my throat but no blocked nose etc. Obviously I am extremely worried. I am a 25 year old female and want to know what support there is out there for someone who hasn’t yet received a diagnosis. I also have noticed my tongue involuntarily “dancing” when sticking it out but it moves around fine. Many thanks for your time.