Searcher
Active member
- Joined
- Oct 17, 2008
- Messages
- 68
- Reason
- Learn about ALS
- Country
- US
- State
- MD
- City
- Gaithersburg
Saw a rheumatologist today re. my antiphospholipid antibody syndrome (a specialist in that condition). Since have been having some slurring, weakness and twitching and what appears to be more erosion of tongue, asked her to check it. She agreed that there is less tissue and more grooving on Left side and that side is a little weaker moving to the left, though she would not call it atrophy, saying that she would make a note of this in her report to my neurologist (who she knows).
Naturally, this has got me rather concerned; that my long-standing symptoms are now at least gradually progressing. Slurring a little at times the past 3 days, though have had this before over the years. can such differences in tongue (left to right comparisions in strength, size, shape, etc.) be anything other than atrophy? Once the tongue becomes involved in ALS how rapidly do things generally progress? Can there be seeming fluctuations for months or years of bulbar symptoms? Does anyone know where I can view pictures of tongue atrophy in ALS? Having other symptoms besides just tongue and speech, but actual anatomical changes in tongue are most worrisome, though pretty sure the Left side had more wearing and slightly weaker at least 16 months ago, when had a flare up of symptoms and similar concerns.
Thanks for any feedback
Searcher
Naturally, this has got me rather concerned; that my long-standing symptoms are now at least gradually progressing. Slurring a little at times the past 3 days, though have had this before over the years. can such differences in tongue (left to right comparisions in strength, size, shape, etc.) be anything other than atrophy? Once the tongue becomes involved in ALS how rapidly do things generally progress? Can there be seeming fluctuations for months or years of bulbar symptoms? Does anyone know where I can view pictures of tongue atrophy in ALS? Having other symptoms besides just tongue and speech, but actual anatomical changes in tongue are most worrisome, though pretty sure the Left side had more wearing and slightly weaker at least 16 months ago, when had a flare up of symptoms and similar concerns.
Thanks for any feedback
Searcher
