thank you Bestfriends14,
i never said this forum scared me, it was the Dr. who made me worried. also, not everyone presents same as i see in ALS, no one knows what do i have , but i did not read here anything first and then started thinking i have something wrong.
i came here because i HAD bad emg, wasting and other issues , so i posted here in thread to ask about things and to have opinion from people more knowledgeable than me.
i know you can not tell me if i have ALS or not, no one can and i dont think there is anyone who Wants to have it eather, but i know that people can be concerned (like me) and trying somehow to find support or have opinions, thats all.
i do not have other issues so i dont know what else to think. i ve done tests. spine mri /brain mri ,all clean. blood -clean. what was abnormal?- only emg,.. and my mip /mep a bit low.lungs are good otherwise.
i have heavy leg( where emg was bad) wasted muscles, cough and cant breathe after walking 2 blocks. cant pick things like small earrings, coins.(did not realize before) where else i should look for answers? i am seeing Dr.s and just do updates here to have opinion. whats wrong with it?..
p.s. because i dont have mip/mep on 20% it does not mean i dont have ALS. because i am still walking, it does not mean i dont have it. because 1 emg was bad and new one was ok, it doesn’t say i dont have it or have it.
its a long and for everyone different path so.. we never know!..this forum helped me so far, it did not scared me at all. if i had no symptoms, i would be not posting here.
thank you
Amy