Do you think I may have ALS? thank you!

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Amy O

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my hand here, he said looks like split hand developing?..
 

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Bestfriends14

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No, it doesn't look at all like split hand. At all. If you had split hand, you'd have trouble with doing up buttons, zippers, and twist ties. You'd also have issues with cutting your finger nails and food. Do you have any of these issues? I'm not sure why you have chosen to focus on ALS because you dont show symptoms. You have an EMG that says radiculopathy, not MND. That's a good thing. Yay!!
 

Amy O

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thank you so much. i had bad emg before.i have problem to pick up coins. small things like crumbs, coins, small earrings but not buttoning.

i am afraid now because of my confusion. he said co2 build up? i dont know if regarding my mip 67 and mep 77 results he could assume that?
or some kind dementia he mentioned..

may be i should go to ER? i am not well in terms of thinking and when i walk everything is like i am in boat.

also he said F waves are axons? how bad is it when they are absent?

thank you so much.
Amy
 

KarenNWendyn

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The EMG looks normal to me.
 

Nikki J

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The emg shows no indication of ALS. Absent f waves are sometimes seen in autoimmune neuropathies which are treatable.

i would stay out of the ED unless I felt I was acutely and dangerously ill

if that neuro really threw out dementia and CO2 build up yet did not order testing to explore those theories then either he did not really think it or he is not the right doctor for you.
 

Amy O

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thank you girls.
i also feel he is not the right doctor for me.
he did not order any tests.
just scared me with little answers.only said i need to see neuromuscular doctor.

what do you think about co2? it could be related to my mip/mep, with my numbers?
i read about FTD had connection with ALS.
oh God am i scared...
my head is not ok. very scary this feeling whatever it is.

thank you
Amy
 

Bestfriends14

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Amy, you do not have ALS, so regardless if ALS is sometimes comorbid with FTD, this would not apply to you. I'm not sure what is going on with you, but it's not ALS, so for your own mental health wellbeing, it's perhaps time to explore other avenues in seeing what is going on. With every symptom you add, it points further and further from ALS.

Again, this forum is doing no favours for you and, in fact, I feel it is further exacerbating your fear of this disease.
 

Amy O

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thank you Bestfriends14,
i never said this forum scared me, it was the Dr. who made me worried. also, not everyone presents same as i see in ALS, no one knows what do i have , but i did not read here anything first and then started thinking i have something wrong.

i came here because i HAD bad emg, wasting and other issues , so i posted here in thread to ask about things and to have opinion from people more knowledgeable than me.

i know you can not tell me if i have ALS or not, no one can and i dont think there is anyone who Wants to have it eather, but i know that people can be concerned (like me) and trying somehow to find support or have opinions, thats all.

i do not have other issues so i dont know what else to think. i ve done tests. spine mri /brain mri ,all clean. blood -clean. what was abnormal?- only emg,.. and my mip /mep a bit low.lungs are good otherwise.

i have heavy leg( where emg was bad) wasted muscles, cough and cant breathe after walking 2 blocks. cant pick things like small earrings, coins.(did not realize before) where else i should look for answers? i am seeing Dr.s and just do updates here to have opinion. whats wrong with it?..

p.s. because i dont have mip/mep on 20% it does not mean i dont have ALS. because i am still walking, it does not mean i dont have it. because 1 emg was bad and new one was ok, it doesn’t say i dont have it or have it.

its a long and for everyone different path so.. we never know!..this forum helped me so far, it did not scared me at all. if i had no symptoms, i would be not posting here.



thank you
Amy
 

Vincent

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54 posts here and multiple people who have extensive experience with ALS. Are you hoping you will at some later posts say the right combination of words and we'll all say yes, you do have ALS, and can now become the pathetic person you've always wanted to be. Look, this is an absolute beast of a disease to have. So people with ALS are in the process of dying, we do not have the time or inclination to massage your neuroses. Please find a Health anxiety website and look for help there.
Vincent
 

Amy O

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I dont have neurosis Sir, Vincent. thanks anyway.
i never being disrespectful here and like to be respected as well.
i dont understand this anger.
it IS a thread for people like me, i dont think i offended anyone. if i did, i am sorry.

thanks
Amy
 

lgelb

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Amy, if you read what people here have posted, every one of your questions has been answered. The MIP/MEP as Nikki said does not match with your other results, so it was likely a timing issue. Even if there is a lung issue, it is not ALS. Sometimes even pain in another area, or simple fear, can affect breathing. Your EMG is completely clean. You can consult with a back specialist as to whether any treatment such as PT is indicated for the spine issues that the NCS suggests.

There are ways to be disrespectful without name-calling. Continuing to engage here when ALS is clearly not your issue, is one such. Accordingly, I am closing your thread. Please do not start another. A counselor to address what seems to us to be health anxiety is certainly worth your consideration, along with establishing or continuing a relationship with a primary care physician so as to track whatever physical issues you might also have.

Best,
Laurie
 
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