Do you think I may have ALS? thank you!

Status
Not open for further replies.

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
9,371
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
That is pretty common for the major clinics especially if you haven’t been in their system
 

Amy O

Active member
Joined
Feb 23, 2020
Messages
32
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
NJ
City
Fort lee
its very strange but, this days i have some issue with swallowing ,with froty sputum and lots of burping.and bad cough non stop.i dont know , something is not ok. i have scheduled breathing test. may be will go to ent as well.
thanks a lot again.
 

Amy O

Active member
Joined
Feb 23, 2020
Messages
32
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
NJ
City
Fort lee
you are right, never been there.sorry for typos. “frothy” i meant. i will schedule today emg . lets see... if i may, ill post my results and future outcome of all this. i am frightened some how.
ty
Amy
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
12,691
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
Amy, I think you need to take a breath, step back and calm yourself a little.
You can't keep piling on symptoms until you think you hit the one that convinces us.
ALS does not come on this way, and your doctor should be deciding on tests to schedule and who you should see.

It is worrying when someone reports escalating symptoms and wants to tell doctors what to do and decide for themselves who they should see and what should be done next. You don't have medical training, start with a PCP and work forwards from there, rather than jumping to trying to get into the top specialists without being referred there.
 

Amy O

Active member
Joined
Feb 23, 2020
Messages
32
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
NJ
City
Fort lee
Amy, I think you need to take a breath, step back and calm yourself a little.
You can't keep piling on symptoms until you think you hit the one that convinces us.
ALS does not come on this way, and your doctor should be deciding on tests to schedule and who you should see.

It is worrying when someone reports escalating symptoms and wants to tell doctors what to do and decide for themselves who they should see and what should be done next. You don't have medical training, start with a PCP and work forwards from there, rather than jumping to trying to get into the top specialists without being referred there.
thank you for advice, but i am not a silly teen who tries to convince someone in anything, especially to having most problematic disease ever.
i dont have PCP , never needed ,only Doctor i have is obgyn.

i am in my 40s and have concerns about my health, i ve never been sick , i know my body well enough for my age.

and i can see any Doctor i like to see i guess if i feel and need so and ask advice here who knows more than me in this case.i hope nothing is wrong with it.

ty
Amy
 

KarenNWendyn

Moderator
Forum Supporter
Joined
Jul 29, 2017
Messages
3,762
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
City
Southern Oregon
Amy, with all your symptoms, it would be in your best interest to establish care with an internist (preferably) or a family practitioner. An ObGyn is not really the best type of doctor to interpret the tests you want to get. Patients get into trouble trying to get a non qualified practitioner to order the tests the patient may think he or she needs. It’s better to see an internist or FP, tell them your story, let them examine you, and then order the tests they think are indicated. They can then expedite referral to the appropriate specialist and stay in the loop with your care.
 

Amy O

Active member
Joined
Feb 23, 2020
Messages
32
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
NJ
City
Fort lee
hi all, i had today breathing test. after my test was done,technician stepped out to see Dr. and when she came back ,she only told me i will have another test , fluoroscopy(?) test and will get call from them next week. is this routine? to have more test?
thank you.

p.s. she also told me that, test report will be not ready today but gave me paper with numbers on it and idk if they are ok or not.
ty
Amy
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
9,371
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
Presumably they saw something that made them order a fluoroscopy.

if you want to post the numbers along with your height, weight and age ( because normal values are different depending on these factors) there are people here who do understand them
 

Amy O

Active member
Joined
Feb 23, 2020
Messages
32
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
NJ
City
Fort lee
Presumably they saw something that made them order a fluoroscopy.

if you want to post the numbers along with your height, weight and age ( because normal values are different depending on these factors) there are people here who do understand them
thank you Nikki,
132.3lb
61.8inch
bmi 24
 

Attachments

  • 25091AC3-8405-481B-8EAE-50496721E721.jpeg
    25091AC3-8405-481B-8EAE-50496721E721.jpeg
    714.7 KB · Views: 100

Amy O

Active member
Joined
Feb 23, 2020
Messages
32
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
NJ
City
Fort lee
this is only paper they have me.
ty
Amy
 

Amy O

Active member
Joined
Feb 23, 2020
Messages
32
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
NJ
City
Fort lee
i mean-gave me)).sorry
 

KarenNWendyn

Moderator
Forum Supporter
Joined
Jul 29, 2017
Messages
3,762
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
City
Southern Oregon
Those are outstanding results and don’t suggest a breathing problem of the type we would see with ALS.
 

Bestfriends14

Senior member
Forum Supporter
Joined
May 7, 2017
Messages
979
Reason
CALS
Diagnosis
05/2017
Country
CA
State
AB
City
CALGARY
Yup, I second what Karen says. Those results are enviable excellent. That's great news!

Good luck to you
 

Amy O

Active member
Joined
Feb 23, 2020
Messages
32
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
NJ
City
Fort lee
Those are outstanding results and don’t suggest a breathing problem of the type we would see with ALS.
thank you Karen,
i googled about mip and mep, may be numbers are low? idk... that could be a reason for more test? what do you think about?..
ty
Amy
 

Amy O

Active member
Joined
Feb 23, 2020
Messages
32
Reason
Learn about ALS
Diagnosis
00/0000
Country
US
State
NJ
City
Fort lee
thank you Bestfriends14💫
i almost panicked about more testing.
i will follow Dr. and will do test anyways, won’t hurt.
thanks a lot!
 
Status
Not open for further replies.
Top