spirituALS
New member
- Joined
- Feb 27, 2018
- Messages
- 4
- Reason
- Loved one DX
- Diagnosis
- 02/2018
- Country
- Uni
- State
- MA
- City
- Norwell
Hello,
I am a CALS--my mother was diagnosed with ALS about 6 weeks ago. She has limb-onset ALS and no longer has the use of her arms. Her legs are getting weaker, so they will go next. Her breathing /swallowing is great. Her respiratory therapist said her respiratory function was "off the charts". For my mother, this was awful news. Given that my mother can't do anything for herself (we feed her, bathe her, etc.), she has expressed that she "cannot live like this anymore."
She is very serious about wanting to voluntarily stop eating & drinking. My sisters and I do not want her to do this, but I also understand that we don't have this disease and can't truly understand how awful this is for her. We've asked her to wait a few days before making her final decision (she is ready to start immediately) because I wanted to contact hospice care and just get any help I can with what to do in this situation.
Do any of you have experience with somebody who has gone this route?
Thank you!
I am a CALS--my mother was diagnosed with ALS about 6 weeks ago. She has limb-onset ALS and no longer has the use of her arms. Her legs are getting weaker, so they will go next. Her breathing /swallowing is great. Her respiratory therapist said her respiratory function was "off the charts". For my mother, this was awful news. Given that my mother can't do anything for herself (we feed her, bathe her, etc.), she has expressed that she "cannot live like this anymore."
She is very serious about wanting to voluntarily stop eating & drinking. My sisters and I do not want her to do this, but I also understand that we don't have this disease and can't truly understand how awful this is for her. We've asked her to wait a few days before making her final decision (she is ready to start immediately) because I wanted to contact hospice care and just get any help I can with what to do in this situation.
Do any of you have experience with somebody who has gone this route?
Thank you!